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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 01-18-2009, 03:58 PM
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Jess5895 Jess5895 is offline
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Join Date: Dec 2008
Location: Indiana
Posts: 30
Default Fundraisers and benefits...

Anyone have expertise in this area? How do you handle the money that comes in? Do you have to form a non profit and what retrictions are there on the money that you raise? I kind of understand that none of the accounts should be in the childs name because of ssi and medicaid, at least I think! This is a very forgien topic for me and I really need to know how to handle it best.
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Jessica, Mom to Gage born 9/29/2008 @ 38 wks. Trach, vent (off vent 8/09 ), g-tube, PRS, cleft soft palate, growth restriction in utero, shunt due to hydro, dandy walker varient, pachygira, seizures, dislocated leg and knee, optic nerve hypoplasia and possible Moebius Syndrome more......finally released from the hospital February 18, 2009! Also mom to Evie (8)
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