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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

01-14-2009, 01:16 PM
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Junior Member
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Join Date: Dec 2008
Location: Attleboro MA
Posts: 1
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Pediatric Nutritionist
Hi Everyone,
I'm a longtime member. I read alot..........but don't post alot
My daughter has a trach and mic-key button. Can anyone recommend a Pediatric Nutritionist (in Massachusetts) who has experience with Homemade Blended Formulas?
Thanks!
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01-14-2009, 02:34 PM
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Member
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Join Date: Sep 2008
Location: KY
Posts: 699
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I'm not in your area, but do you have an early intervention program that would make a recommendation?
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01-14-2009, 03:30 PM
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Member
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Join Date: Jan 2008
Location: buffalo
Posts: 881
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My son is on a pureed food diet through the GT,the recipie is from cincinnati,PM me if your interested.My son used to retch everday on formula & as soon as we started the diet it stopped,its been 2 yrs now....Angie
__________________
 Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!!  .Ava 2 years www.aydenava.blogspot.com
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01-14-2009, 05:41 PM
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Senior Member
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Join Date: Jan 2007
Location: Colorado
Posts: 3,979
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There is a yahoo board specifically for BD. On that board, I have seen mentioned an RD who specializes in BD's and does remote consultations - if you can't find one locally. That board is very similar to this one, where everyone is willing to help others and share their BTDT knowledge.
Also, have you checked out www.blenderizeddiet.com ?
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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01-15-2009, 12:20 AM
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Senior Member
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Join Date: Feb 2007
Location: Seattle WA
Posts: 6,489
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I don't have a recommendation on a nutrionist. I wanted to ask if you have the Homemade Blended Formula Handbook. Here's the link in case you haven't seen it.
http://www.mealtimenotions.com/Homem...laHandbook.htm
I should also say we do homemade formula for Ainsley and it is great! Initially it stopped her vomiting. And she has so much more energy and vitality. Plus her BM's are more normal and not so stinky. It's a very good thing IMO. (Except the extra work.)
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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