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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

01-11-2009, 07:38 AM
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Join Date: Jan 2008
Location: buffalo
Posts: 881
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Resourse Boost Breeze
I just thought Id share,Ayden has been drinking theese (they look like juice boxes)& 1 is a whole pureed tube feeding that I get to skip & his belly has been fine with them.With pediashure & every formula under the sun he always retched,thats why we went to the pureed foods diet.Cinci turned us on to these,not milky at all,tastes like juice,theres peach,orange,berry,& friut punch,& 1 is a complete meal & his belly stays soft,retching free even if I give it through the tube.Im excited about them & Ins. did pay for them,so I though Id let you all know ,in case anyone has issues like we did w/formula.....Angie
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 Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!!  .Ava 2 years www.aydenava.blogspot.com
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01-11-2009, 04:03 PM
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Join Date: Jan 2007
Location: Colorado
Posts: 3,982
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Thanks... that's always nice to know and to have along just in case.
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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01-11-2009, 04:43 PM
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Senior Member
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Join Date: Apr 2008
Location: Virginia
Posts: 2,664
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Quote:
Originally Posted by aydenava
I just thought Id share,Ayden has been drinking theese (they look like juice boxes)& 1 is a whole pureed tube feeding that I get to skip & his belly has been fine with them.With pediashure & every formula under the sun he always retched,thats why we went to the pureed foods diet.Cinci turned us on to these,not milky at all,tastes like juice,theres peach,orange,berry,& friut punch,& 1 is a complete meal & his belly stays soft,retching free even if I give it through the tube.Im excited about them & Ins. did pay for them,so I though Id let you all know ,in case anyone has issues like we did w/formula.....Angie
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Is there milk in it, or does it just not taste milky? I'll have to research this.
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Karin
Alex's Mom
Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/
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01-11-2009, 06:36 PM
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Member
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Join Date: Jan 2008
Location: buffalo
Posts: 881
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Theres no milk in it,its clear colors
__________________
 Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!!  .Ava 2 years www.aydenava.blogspot.com
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