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Old 12-30-2008, 07:26 PM
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Default Salivary gland removal
Ciara had hers done on Friday with an overnight stay. Her secretions have decreased to very tolerable, she hasn't needed any oxygen since right after surgery and her nasty choking cough is virtually gone. Results are much better than the botox we had been going with. Karen
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Old 12-30-2008, 09:08 PM
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good news!!!
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Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/

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Old 12-30-2008, 10:19 PM
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YEA!
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08

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Old 12-30-2008, 11:58 PM
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that's wonderful
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Mom to Geoffrey born November 13, 2007 at 23 weeks,217 days in NICU, PDA, severe BPD & CLD, Pulmonary hypertension, Left Vocal Cord Paralyzed, Pectus Carinatum, Esophageal Achalasia, Plus more minor DX's.Vent Free after 19mths,Trached and Mic-key button on 3/21/08,Decanulated 4/29/2010, Krista 21, Zoee 9,MIL to Antonio 27,Grandma to Mia 3
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Old 12-31-2008, 06:18 AM
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Yea!! Deb
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24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
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Old 12-31-2008, 12:01 PM
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That's good news. How did the decision to have the removal done come about?

I think it's definetely something I'd like to address with Alex at some point.
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Old 12-31-2008, 10:41 PM
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Quote:
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That's good news. How did the decision to have the removal done come about?

I think it's definetely something I'd like to address with Alex at some point.
Botox was helpful but I felt it wasn't going to work long term. After listening to the moms here who had it done I started trying to convince DH. Then on the visit with ENT to upsize the trach; 2 docs and the chief RT all brought it up at separate times. This gave Charlie the chance to ask questions and get reassurance. We're not a week out but I feel good about the decision. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel.

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Old 12-31-2008, 11:40 PM
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I am so glad that it worked!!!!
I have thought about this for Celia but with all the surgeries coming up in the next few years I think it's out for a while.
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Old 01-01-2009, 01:11 AM
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Wonderful news and I am so happy for ya'll. Happy, happy, happy!!!

Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count... Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all.

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Old 01-01-2009, 10:44 AM
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Originally Posted by alizesmom View Post
Botox was helpful but I felt it wasn't going to work long term. After listening to the moms here who had it done I started trying to convince DH. Then on the visit with ENT to upsize the trach; 2 docs and the chief RT all brought it up at separate times. This gave Charlie the chance to ask questions and get reassurance. We're not a week out but I feel good about the decision. Karen

Thanks Karen. I had mentioned it once to a doc, and it was clear by his reaction that he did not agree with the procedure and I dropped it. I might start bringing it up again. We currently use robinul to control her secretions - I wonder how long it will be before it's not effective on her.
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