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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

11-05-2003, 01:07 PM
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Join Date: Mar 2002
Location: Virginia, USA
Posts: 305
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Michael is getting secretions up past his vocal cords and choking on it. His v/cs are paralyzed. I'm just 2 weeks into the LTP and wondering if it's the plastic stent dislodging or lodging in between the v/c making him choke. Any ideas?
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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11-08-2003, 05:28 PM
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Join Date: Jul 2002
Location: South Carolina
Posts: 607
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HI Susan! I certainly have no idea, but I sure hope it improves. Call the docs soon and let us know what they say!
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Lisa- mom of John Patrick age 9 and formerly trached Joel age 4- DECANNULATED JANUARY 25, 2004!!!
Foster mom to Sierra born July 16, 2005- CHARGE syndrome, grade IV kidney reflux, severe hearing loss, trach & gtube for laryngeal cleft and chronic aspiration, gorgeous blue eyes
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11-11-2003, 07:08 AM
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Member
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Join Date: Mar 2002
Location: Virginia, USA
Posts: 305
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Just in case this happens to someone in the future, thought I would post the answer. Apparently when the stent is in, it pushes up against the esophagus and makes it very difficult and sometimes painful to swallow. Michael would actually gag, turn red, cry (tears - no voice of course), and turned blue a couple of times. So if you have an LTP, make sure you feed your child stuff like rice, mashed potatoes, jello, etc. until the stent is removed! Especially if you have a non-responsive child.
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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11-11-2003, 07:38 AM
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Administrator
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Join Date: May 2002
Location: Phoenix, Arizona
Posts: 7,320
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Sue - I think you are in the unique position of having one of the very few kids on this board that actually eats by mouth  I hope Michael is feeling better now.
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11-11-2003, 07:42 AM
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Member
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Join Date: Mar 2002
Location: Virginia, USA
Posts: 305
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Ann, I sent you an email. Long-winded, sorry! Yes, every doctor or nurse I've seen says that Michael is an anomoly, an enigma, a "special case", "unusual". Thank God that my other two are 'cookie-cutter' normal! How do people do it with more than one special needs child. I am very grateful that he eats by mouth though. We took him to a seafood bufet once and this kid chowed down on crab, oysters, scallops, shrimp, fish, it was so awesome to see him do something "normal"!
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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