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Old 11-05-2003, 01:07 PM
Michael's mom Michael's mom is offline
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Michael is getting secretions up past his vocal cords and choking on it. His v/cs are paralyzed. I'm just 2 weeks into the LTP and wondering if it's the plastic stent dislodging or lodging in between the v/c making him choke. Any ideas?
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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Old 11-08-2003, 05:28 PM
J&Jsmomee J&Jsmomee is offline
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HI Susan! I certainly have no idea, but I sure hope it improves. Call the docs soon and let us know what they say!
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Old 11-11-2003, 07:08 AM
Michael's mom Michael's mom is offline
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Just in case this happens to someone in the future, thought I would post the answer. Apparently when the stent is in, it pushes up against the esophagus and makes it very difficult and sometimes painful to swallow. Michael would actually gag, turn red, cry (tears - no voice of course), and turned blue a couple of times. So if you have an LTP, make sure you feed your child stuff like rice, mashed potatoes, jello, etc. until the stent is removed! Especially if you have a non-responsive child.
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Old 11-11-2003, 07:38 AM
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Sue - I think you are in the unique position of having one of the very few kids on this board that actually eats by mouth I hope Michael is feeling better now.
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Old 11-11-2003, 07:42 AM
Michael's mom Michael's mom is offline
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Ann, I sent you an email. Long-winded, sorry! Yes, every doctor or nurse I've seen says that Michael is an anomoly, an enigma, a "special case", "unusual". Thank God that my other two are 'cookie-cutter' normal! How do people do it with more than one special needs child. I am very grateful that he eats by mouth though. We took him to a seafood bufet once and this kid chowed down on crab, oysters, scallops, shrimp, fish, it was so awesome to see him do something "normal"!
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