We saw the ORL surgeon on Friday, and we had a good talk. We are going to plan for the LTP in the Summer with removal of the trach by that Christmas if all goes well. He said he's only been doing the resection for the last 2 years (with huge success) but since Alli is so small and her airway is so small even for her size he recommended the rib graft. No problem convincing me, I was too scared of the resection in all honesty...it just seems too drastic. He was very happy with Alli's vocalizations-- both wearing the pmv and without it. She has picked up the "duh" sound over the last few days, so maybe we will get a DaDa soon? Just wanted to give a little update. Deb
Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08