 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
12-03-2008, 01:28 PM
|
||||
|
||||
weight at decannulation
if anyone can actually remember, would you be able to tell me how much your child weighed when they were decanned?
were you ever advised of a minimum weight or size?
__________________
*clare. mum to emily  12/02/07 (placental abruption)APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day. Grade III SGS - emergency tracheotomy July 2007. 2 stage LTR July 09 - DECANNED 27.9.09 tracheomalacia (GONE!! Sept08) partial agenesis of the corpus callosum residual VSDs post-surgery but lung pressures normal (Nov08), ?septo-optic dysplasia. 
|
|
#2
12-03-2008, 02:18 PM
|
||||
|
||||
At our attempt last May, Alex was less than 20 pounds, but I don't remember more precisely. There was no disussion of a minimum weight.
__________________
Karin Alex's Mom Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/ 
|
|
#3
12-03-2008, 02:41 PM
|
||||
|
||||
|
While trying to impress upon us the importance of steady growth and weight gain, Sahana's Pulm. mentioned to us that ENTs will not attempt any airway surgeries below 10kg (about 22lbs).
I haven't tried to verify / validate it with our ENT, since we wouldn't consider any elective surgeries or decannulation before summer next year, and if she maintains her current rate, we should be pretty close to that mark. Harish
__________________
Dad of Sahana; 24-weeker born 12/2007; Acquired sub-glottic stenosis due to intubation and multiple extubations; Decanned as scheduled on April 12, 2010
|
|
#4
12-03-2008, 03:01 PM
|
||||
|
||||
|
Sienna was right around 20 lbs (15 months old). A minimum weight was never mentioned to us.
__________________
Claudia - Mom to Sienna (4-22-07) and Sammy (12-14-2008). Sienna was trached 9-27-07 for vocal cord paralysis. Right cord now moving. Decannulated on 7-16-2008! 
|
|
#5
12-03-2008, 04:35 PM
|
||||
|
||||
|
Kate was about 23lbs. She was scheduled for an LTP (which she ended up not needing), but her ENT never impressed on me a minumum weight. He told me Kate's overall health, nutritional and pulmonary status were much more important.
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
|
|
#6
12-03-2008, 06:35 PM
|
||||
|
||||
|
Shelby was about 28-30 pounds. No weight minimum was mentioned to me.
Hope
__________________
custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08  http://s307.photobucket.com/albums/n...t=4acb482c.pbw
|
|
#7
12-03-2008, 06:48 PM
|
||||
|
||||
|
the old saying used to be about 3 years/30 lbs but I think that has fallen out of favor and ENTs are routinely decanning and/or doing reconstructive surgery on younger/smaller kids.
Sebby
__________________
Menna born 1/19/04 former 24 weeker, trach 4/16/04 for tracheomalacia, developed subglottic stenosis. CTR 7/27/05--double stage LTP 3/13/ 2008.. Decan October '08....healthy happy crazy kid!!
|
|
#9
12-05-2008, 10:44 PM
|
||||
|
||||
|
Since it was recent... Ayden was about 23lbs. there was no minimum... but Ayden is a little different since he only has BPD - no structural issues. After Ayden got his trach out, in 2 months, he gaine about 4lbs and grew 2 inches. (?)
__________________
Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - Follow decan at: http://sleepy-dogs.blogspot.com/
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 07:48 PM.