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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
12-02-2008, 04:15 PM
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Anthony Got A Joey Feeding Pump, Who Else Has One?
anthony got a kangaroo joey pump today, i was just curious who else has them, and how you guys like them?
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Mom to Anthony (4 1/2) born on 7/6/05 at 29 weeks. Thought to have Jeunes Syndrome. Trach/gtube/sprints off the vent twice a day. Cadence 15 months. Jayden 7 weeks. Stepmommy to Ariana age 8 and a half Anthony's Myspace http://www.myspace.com/anthonyxavierruiz My Myspace http://www.myspace.com/babysupermansmommy 
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#2
12-02-2008, 04:43 PM
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We had one for as while. It was OK but nothing to compare to a Zevex. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#3
12-02-2008, 06:51 PM
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We had one until a month ago..there are pros & cons. Priming is much easier with Joey, but Infinty is so much portable for a baby.
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#4
12-02-2008, 07:53 PM
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My only experience is with the Joey and I like it just fine. Easy to use and I haven't had any trouble moving it in the backpack. I wear the pack or just stick it on the stroller or wheelchair. I find it easy to program and easy to set up. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#5
12-03-2008, 01:15 AM
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We have one, and it seems simple enough and like Karen said it's easy to program, but it's what we have always had...... plus he only uses at night so don't have to worry about transporting......
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Dawn Mom to Geoffrey born November 13, 2007 at 23 weeks,217 days in NICU, PDA, severe BPD & CLD, Pulmonary hypertension, Left Vocal Cord Paralyzed, Pectus Carinatum, Esophageal Achalasia, Plus more minor DX's.Vent Free after 19mths,Trached and Mic-key button on 3/21/08,Decanulated 4/29/2010, Krista 21, Zoee 9,MIL to Antonio 27,Grandma to Mia 3  
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#6
12-04-2008, 02:45 PM
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Joey Pump
Tommy has a Joey and Zevex Infinity pump. We like the Infinity better (except the door always breaks), but it's much more portable and smaller and lighter. We use neither now as Tommy is all gravity feed with a syringe.
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Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
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