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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
11-18-2008, 10:40 AM
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Natalie is officially trached!
Natalie's surgery yesterday morning went great. Now we're waiting for the site to heal and for her to get weaned off the vent. Her blood gases have come back looking great. Her x-rays still show some infiltrations on the bottom of both lower lobes (she had pneumonia when admitted).
Pulm says we're going to keep her on sedatives and pain meds for the next couple days and then start to wean. I really hope they can wean her off the vent, I am kinda nervous about that. At home she was requiring 3-4L of O2, so I'm thinking she'll probably need some O2 coming home. But the big problem is fixed (obstruction) so I hope everything gets better here on out! I'm definitely going to be on here using the search button as soon as we are able to actually do some trach care. I had already done quite a bit of research in the past few months because I figured we were headed this direction. But there's nothing better than hands on expirience! Thanks for reading! Just wanted to let you guys know what was going on! 
__________________
Mom to Natalie April 13 2007 HIE, CP, Chronic Lung Disease plus many more! 
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#2
11-18-2008, 11:00 AM
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I"m glad the surgery went well and Natalie is resting comfortably. Kate was kept sedated for a few days but she was off the vent very quickly. You are very positive about this and that will serve you well!!
Keep updating us and asking questions!!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#3
11-18-2008, 11:26 AM
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Im happy to see the smiley icon next to your post,beging trached means no more struggling for every breath,& that is a huge relief for your Natalie.My son was finaly able to breath when he got his trach & it was a great thing for him,& was able to be a normal baby....Good luck,were here for you......Angie
__________________
 Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!! .Ava 2 years www.aydenava.blogspot.com
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#4
11-18-2008, 11:37 AM
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Well...I don't know that a congratulations is in order....but I'm so glad that things went well. I'll be thinking of you guys in the next few weeks as you figure out what Natalie's new "normal" is. Everyone here is great and it is the place to ask--Get some rest and take care of yourself. I think that you will feel a sense of relief when you see her breathing so much easier.
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#5
11-18-2008, 11:46 AM
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I'm glad the airway obstruction problem has been corrected. Hopefully Natalie will be more comfortable from here on out. She's in my thoughts and prayers.
__________________
Gabriel: born 12-07 PRS G-tube and Nissen 1-28-08 Trach 6-06-08 Palate repaired 2-03-09 www.caringbridge.org/visit/gabrielsmith
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#6
11-18-2008, 11:52 AM
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I'm glad she's breathing easier and that you are feeling so good about things. Welcome to the boards and we'll be here if you need any support or advice. I hope you find it's an easy transition for your family.
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#7
11-18-2008, 12:44 PM
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glad things went well and she is breathing easier. If you have any questions - ask away
Julie
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#8
11-18-2008, 01:02 PM
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I'm glad that things went well. I'm sure it's a relief to see her breathing easier. We're here if you need us.
__________________
Claudia - Mom to Sienna (4-22-07) and Sammy (12-14-2008). Sienna was trached 9-27-07 for vocal cord paralysis. Right cord now moving. Decannulated on 7-16-2008! 
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#9
11-18-2008, 01:42 PM
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Your attittude is great! I don't think I would have been able to post a smilie next to my first post.
You've come to the right place for advice. The people on this forum are gentle and smart. That's a hard combination to find.
__________________
~Caty mom to Bo (4/05) and Nate (3/07 ~trached 2/14/08 for resp. failure secondary to congenital hypotonia~vented while asleep)
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#10
11-18-2008, 07:38 PM
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WELCOME!! Great to see you over here!!! Glad things are going well!! You have a wonderful attitude and that will serve you well!! We all are always here if you need anything!
__________________
 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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