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Old 11-17-2008, 09:31 AM
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haltec haltec is offline
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Thumbs up Sienna Update
Hi.
Sienna did great on Thursday. They 'cored' out the center of her stoma and put a 2.5 neo trach back in for an hour. She's been decannulated since July and it was very difficult for me to see her with a trach back in - even though I knew it was only temporary. We 'decannulated' her in recovery and we sent to the complex airway floor for our 24 hour observation. Sienna was back to herself by dinner time on Thursday and we were released on Friday morning. She's back in daycare today and doing great.

Right now her stoma looks about the same as it did before- with the exception of a scab in the center. I know I owe you all some pictures - I will take some tonight and after the scab is gone to compare.

Dr Rutter wants to scope her again in January to make sure that she doesn't have any granulation tissue and as long as things look good - this may possibly (dare I say it???) be our last OR trip for a while. He will still see her in clinic to monitor her vocal cords.

Thanks for keeping her in your thoughts and prayers.
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Claudia - Mom to Sienna (4-22-07) and Sammy (12-14-2008).
Sienna was trached 9-27-07 for vocal cord paralysis. Right cord now moving.
Decannulated on 7-16-2008!
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Old 11-17-2008, 10:02 AM
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What great news, although it must have been tough to see that trach back. Shelby is going to have to have this done, and I just dread it, for some reason. Pictures when you can!!
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08

http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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Old 11-17-2008, 10:24 AM
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Gretchen(Celia's mom) Gretchen(Celia's mom) is offline
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Wow what a trooper!!! Glad all went well and she is back to buisness as usual today!!!!!
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Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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Old 11-17-2008, 10:29 AM
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Great news! Yay Sienna...and mom of course.
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

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Old 11-17-2008, 11:10 AM
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Glad she is doing well, it must have been hard to see the trach back, even if only for a short while. Why do they do that?

Julie x
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
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Old 11-17-2008, 11:13 AM
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Claudia, thanks for the update. I've been wondering how it went for you guys. Glad to hear things went smoothly. I think Kate's stoma closure won't involve another trach, but not sure. I would have been reeling as well.

Yes pics when you can please!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/

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Old 11-17-2008, 12:34 PM
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Quote:
Originally Posted by JWorthington View Post
Glad she is doing well, it must have been hard to see the trach back, even if only for a short while. Why do they do that?

Julie x
From what I understand, there is a chance when they core the stoma that air can get under the skin around the stoma. This is usually not a problem once the child is fully awake in recovery, but during the waking process if the child gets upset and blows hard. So for the last 7 years he's been putting a trach back in until the child is awake and calm. He said he hasn't had any occurances of air under the skin since he's been using this technique. It makes sense I guess...
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Claudia - Mom to Sienna (4-22-07) and Sammy (12-14-2008).
Sienna was trached 9-27-07 for vocal cord paralysis. Right cord now moving.
Decannulated on 7-16-2008!
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Old 11-17-2008, 02:52 PM
jbromley jbromley is offline
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That is great. I am glad she is doing so well. Can't wait to see the pics.

Jennifer
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Jennifer
mom to Elizabeth our little miracle and the most loving child I have ever met. Born 5/27/05 33-weeker, trached on 8/20/05 and most recently found out she has bilateral vocal cord paralysis and subglottic stenosis, also has g-tube, VP shunt due to hydrocephalus, tetralogy of fallot-repaired, esophageal atresia-repaired and chronic lung disease.
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Old 11-17-2008, 03:21 PM
hcs_mom hcs_mom is offline
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I'm so glad Sienna did so well. Won't it be nice to stay out of the OR for a while?

Can't wait to see the pics.
Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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