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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

11-14-2008, 08:39 PM
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How do u know if its stridor?
I know its noisey breathing,but is it on the inhale or exhale or both?Aydens getting over phemonia & it sounds like hes snoring,but could it be stridor?Or is stridor at all times & not just sleeping?......Anyone who can help,thanx,....Angie
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 Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!!  .Ava 2 years www.aydenava.blogspot.com
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11-14-2008, 08:43 PM
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Here's Keturah's stridor video. Also notice the retractions in her chest as she breaths. http://www.youtube.com/watch?v=QkaX83H31QY I think it sounds different for each child, and it can be deeper if they are bigger. I hope it's just a little bit of snoring.  If he has some junk from the pneumonia, then it could just be some congestion. I hope so.
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11-14-2008, 08:47 PM
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My recollection is that stridor is more of a wheezy gasping for air kind of sound. I wouldn't describe it as sounding like a snore. Here's a good article, don't know if it will help. http://www.aafp.org/afp/991115ap/2289.html
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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11-14-2008, 08:49 PM
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Quote:
Originally Posted by lovemymak
Here's Keturah's stridor video. Also notice the retractions in her chest as she breaths. http://www.youtube.com/watch?v=QkaX83H31QY I think it sounds different for each child, and it can be deeper if they are bigger. I hope it's just a little bit of snoring.  If he has some junk from the pneumonia, then it could just be some congestion. I hope so.
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Yep that's pretty much how Ainsley sounded when she was extubated before the trach.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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11-15-2008, 06:36 AM
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Sam sounded pretty much the same as Keturah before his trach too. It did not sound like snoring and was constant. When he got his trach we kept having to check he was still breathing cos we couldnt hear him anymore!!
Julie x
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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11-15-2008, 11:01 AM
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Quote:
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When he got his trach we kept having to check he was still breathing cos we couldnt hear him anymore!!
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That was us too! We had 9 months of stridor. I had the hardest time with friends' babies. I was always checking the rise and fall of their chest to make sure they were breathing, because they didn't seem "normal". 
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11-15-2008, 12:50 PM
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Quote:
Originally Posted by lovemymak
That was us too! We had 9 months of stridor. I had the hardest time with friends' babies. I was always checking the rise and fall of their chest to make sure they were breathing, because they didn't seem "normal". 
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 I do that too!!  Even with Sam I still catch myself doing that!
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT!
www.caringbridge.org/mn/mitchelljohncragg
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11-15-2008, 04:36 PM
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it can be on inhale or exhale i think. emily's started off sounding like a snore but got more high pitched and "clear" sounding. she had a lot of subcostal recession as well.
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*clare.
mum to emily 12/02/07 (placental abruption)
APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day.
Grade III SGS - emergency tracheotomy July 2007.
2 stage LTR July 09 - DECANNED 27.9.09
tracheomalacia (GONE!! Sept08)
partial agenesis of the corpus callosum
residual VSDs post-surgery but lung pressures normal (Nov08),
?septo-optic dysplasia.
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11-16-2008, 02:58 PM
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Thanx everyone,it really just sounds like snoring when he inhales,its just wierd its all of a sudden,ya know?
__________________
 Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!!  .Ava 2 years www.aydenava.blogspot.com
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11-16-2008, 04:03 PM
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Glad the experts could help ya... Does also have some nasal congestion?? Ayden has been snoring some b/c his nose has been stuffy. In addition, Ayden has an URI and is gurgly in the back of his throat, which completely freaked us out. I got some musinex to thin out his nasal secretions. (?) B/c of the trach, I don't think Ayden has figured out that he can breath through his mouth b/c it's always closed and is trying to breath through the trach hole.
Also, I saw some nasal spray for kids that is supposed open up the nasal passages. They used to have little noses nose drops w/ just a touch of the sudefed in it... it used to work like a charm for Ayden, even w/ a trach.
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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