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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

11-06-2008, 08:01 PM
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Join Date: Aug 2007
Location: Alberta
Posts: 871
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I love driving 40 minutes and going to a hospital appointment that is running late...
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11-06-2008, 08:15 PM
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Mentor
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Join Date: Jul 2004
Location: USA
Posts: 7,467
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Man, that happened to me today too! I think they forgot me at the orthodontist.
With my boys I mention ahead that I'm pressed for time, ask when is the office slowest. Then I make sure I'm early and ask every now and then (within reason) how they're doing on time...a good excuse if we're running out of oxygen. (we;re not even on oxygen) 
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!
The Birthday Boys by TwinTransfusion, on Flickr
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11-06-2008, 09:12 PM
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Join Date: May 2007
Location: Cochranton, PA
Posts: 4,870
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I'm not crazy about appointments running late but depending on the type of doctor I try to understand. What I hate is when the staff doesn't even try to keep you informed. Just tell me you're so many minutes (hours) late and I'll take a walk or something and come back later. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel.
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11-06-2008, 09:14 PM
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Senior Member
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Join Date: Nov 2006
Posts: 1,391
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Quote:
Originally Posted by twintotwin
how they're doing on time...a good excuse if we're running out of oxygen. (we;re not even on oxygen) 
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Love it! I'll have to remember that one. 
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Has a daughter who is vent dependent.
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11-07-2008, 07:09 AM
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Join Date: Jul 2007
Location: Vienna, VA
Posts: 2,227
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I hate when the appointments are late too. Every time Cedric has a debridment of the virus polyps in his upper airway it is late. But I understand why, Dr Preciado always take the time to talk to every parent and stays with you until all your questions and concerns are answered and that sometimes can take time so in this case I don't mind. But otherwise for other appointments it frustrates me a little and I understand you.
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps
https://www.babiesonline.com/babies/c/cedric1/
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11-07-2008, 07:33 AM
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Join Date: Feb 2008
Location: Alabama
Posts: 653
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Quote:
Originally Posted by twintotwin
a good excuse if we're running out of oxygen. (we;re not even on oxygen) 
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 We use vent battery power although I usually take the power strip with us. No need for them to know that.
I love how most of the offices have notes posted saying: "If you are more than 10 minutes late for your appointment, we will need to reschedule you."
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~Caty
mom to Bo (4/05) and Nate (3/07 ~trached 2/14/08 for resp. failure secondary to congenital hypotonia~vented while asleep)
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11-07-2008, 07:49 AM
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Senior Member
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Join Date: Mar 2002
Location: Moore, OK
Posts: 6,010
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Oh that is a huge pet peeve with me. We quit using the Children's Hospital clinics for this reason. Thankfully we have private insurance coverage on Allison so we can see --mostly-- the same doctors in their private offices. No waiting, no frustration. I am interviewing for a job on the 24th that will hopefully put me in the position to make a change at Children's. I'm nervous about the idea of working again, but this is a great opportunity and only part time. Deb
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Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
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11-07-2008, 08:52 AM
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Senior Member
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Join Date: Dec 2004
Location: England
Posts: 10,932
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I hate that too. sam had a hospital appointment a few weeks ago at 4pm, we arrived at 3.50 and finally got in to see the doctor at 5pm. Mind you, this doctor is thorough with all the patients so I can forgive a little, it was just the drive home in rush hour traffice. Normally a 40 minute run - we didn't get home till 7.15pm!!!
Julie xxx
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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11-07-2008, 11:14 AM
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Senior Member
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Join Date: Feb 2007
Location: Seattle WA
Posts: 6,493
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).
Blog Link: http://ainsleyrae.blogspot.com/
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11-07-2008, 11:23 AM
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Senior Member
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Join Date: Mar 2002
Location: Moore, OK
Posts: 6,010
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I odnt understand why they keep overbooking like that. Seems like it would make more sense to give enough time in the schedule for the doctor to actually see and talk to each patient. Arghhh
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Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
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