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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

10-24-2008, 01:28 PM
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Location: Scotland
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Quote:
Originally Posted by Ainsley's Mom
I think if you find the PMV dries him out you could just add a few drops of saline throughout the day and problem solved. I think if he "sounds" dry then that's too dry. Hope that makes sense.
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personally, if dryness is the only problem then i would go with mist rather than saline.
__________________
*clare.
mum to emily 12/02/07 (placental abruption)
APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day.
Grade III SGS - emergency tracheotomy July 2007.
2 stage LTR July 09 - DECANNED 27.9.09
tracheomalacia (GONE!! Sept08)
partial agenesis of the corpus callosum
residual VSDs post-surgery but lung pressures normal (Nov08),
?septo-optic dysplasia.
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10-24-2008, 02:25 PM
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Join Date: Apr 2008
Location: Virginia
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Quote:
Originally Posted by saywhatyouwill
personally, if dryness is the only problem then i would go with mist rather than saline.
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How would you do that, if you were me? I can't imagine putting an active toddler in his room to use the humidifier a few times a day. I'm not terribly comfortable with the idea of saline, though, either. We use mist at night, and if it seems too bad, we switch to an HME for an hour, but that makes him mad.
I'm not trying to be argumentative. I don't know that we have a problem brewing, but I sure don't want to create one if I can prevent it.
__________________
Karin
Alex's Mom
Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/
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10-24-2008, 04:08 PM
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Location: Scotland
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Quote:
Originally Posted by KJKK8437
How would you do that, if you were me? I can't imagine putting an active toddler in his room to use the humidifier a few times a day. I'm not terribly comfortable with the idea of saline, though, either. We use mist at night, and if it seems too bad, we switch to an HME for an hour, but that makes him mad.
I'm not trying to be argumentative. I don't know that we have a problem brewing, but I sure don't want to create one if I can prevent it.
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well, you may have noticed that i know very little, if slightly more than nothing :-)
we turn the mist up so high that we only have to keep emily underneath it for a matter of minutes for it to have an effect. we had the same problem that you refer to - humidifier in her bedroom - so we switched to a very small and portable one that was very cheap but very effective.
ps did my earlier post sound cheeky? i didn't mean it to in any way at all! 
__________________
*clare.
mum to emily 12/02/07 (placental abruption)
APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day.
Grade III SGS - emergency tracheotomy July 2007.
2 stage LTR July 09 - DECANNED 27.9.09
tracheomalacia (GONE!! Sept08)
partial agenesis of the corpus callosum
residual VSDs post-surgery but lung pressures normal (Nov08),
?septo-optic dysplasia.
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10-24-2008, 04:36 PM
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Senior Member
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Join Date: Apr 2008
Location: Virginia
Posts: 2,664
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Quote:
Originally Posted by saywhatyouwill
well, you may have noticed that i know very little, if slightly more than nothing :-)
we turn the mist up so high that we only have to keep emily underneath it for a matter of minutes for it to have an effect. we had the same problem that you refer to - humidifier in her bedroom - so we switched to a very small and portable one that was very cheap but very effective.
ps did my earlier post sound cheeky? i didn't mean it to in any way at all! 
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There was nothing wrong with your prior post! I'm sorry if I sounded otherwise. I think I remember something -- you don't have a trach-collar humidifier, do you? You just use a room humidifier? Is that right?
__________________
Karin
Alex's Mom
Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/
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10-27-2008, 08:18 AM
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Senior Member
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Join Date: Jan 2008
Location: Scotland
Posts: 1,374
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Quote:
Originally Posted by KJKK8437
There was nothing wrong with your prior post! I'm sorry if I sounded otherwise. I think I remember something -- you don't have a trach-collar humidifier, do you? You just use a room humidifier? Is that right?
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yeah - it blows the mist directly at her. if you hold her right up to it i think it's comparable with the mist collar.
__________________
*clare.
mum to emily 12/02/07 (placental abruption)
APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day.
Grade III SGS - emergency tracheotomy July 2007.
2 stage LTR July 09 - DECANNED 27.9.09
tracheomalacia (GONE!! Sept08)
partial agenesis of the corpus callosum
residual VSDs post-surgery but lung pressures normal (Nov08),
?septo-optic dysplasia.
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10-28-2008, 03:42 AM
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Senior Member
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Join Date: Jan 2008
Location: Scotland
Posts: 1,374
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DRY VERSUS CHEWING GUM!!!!
emily's secretions have been rotten this week. as soon as i walked into nursery yesterday i could hear she was all blocked up. the staff seemed oblivious. last night i was getting up lumps that looked like chewing gum (big, big lumps) and hard little dried up bits. was gross. the humidifier didnt' seem to be helping at all. so we are picking up our nebuliser this afternoon and hope that it will improve things.
__________________
*clare.
mum to emily 12/02/07 (placental abruption)
APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day.
Grade III SGS - emergency tracheotomy July 2007.
2 stage LTR July 09 - DECANNED 27.9.09
tracheomalacia (GONE!! Sept08)
partial agenesis of the corpus callosum
residual VSDs post-surgery but lung pressures normal (Nov08),
?septo-optic dysplasia.
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