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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
10-13-2008, 04:19 PM
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A molded car seat???
Has any one had to have a special carseat for their child? Makiya will have to have a molded carseat/ stroller or something to support her all the way around and i was just wondering if anyone had advice about this.
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Leeanna, mother to Makiya  7/17/07, diagnosed with hypophosphatasia(a rare bone disease), trached 03/11/08, vent dependent , GT, tracheomalacia
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#2
10-13-2008, 04:24 PM
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We use the Special Tomato, it offers great support, plus with options it can turn into a chair inside too! We very rarely ride in a car, but when we do I am sooo thankful for this seat, without it Emma would never be able to ride, she just can't "Do" normal carseats.http://www.adaptivemall.com/sptompscarse.html
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#3
10-13-2008, 09:27 PM
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We have britax regent...which is the same exact thing as the special needs britax. It works very well for us.
If it's tightened and postioned properly she can't slide anywhere.
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Trish PROUD Mama to TWO 26 wkrs 1055 g- Olivia Forever 7, trached for 6.5 yrs, gtube, iv port, BPD, Hydro/VA Shunt, Epilepsy, CP, Fought Hepatoblastoma for 28 months 688 g- Nathaniel is my bright 10.5yo
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#4
10-14-2008, 12:35 AM
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If they are talking about an actual molded seat, I'm not sure I'd go that route for the reason that Makiya will outgrow it so quickly. There are a lot of different seating (carseat/stroller) arrangements available that come with a lot of flexibility. I'd steer away from any type of molded seat.
Good luck!
__________________
Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#5
10-14-2008, 07:59 AM
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This isn't the same issue, but we used a special tomato tumbleform deluxe feeder seat from the same website that Lori posted. I can't find the exact one we got. (They come in "old version" and "special tomato version".)
I know at least one of the ones we were looking at could have been "upgraded" to also be a car seat, but we didn't need that. I know that a feeder seat is not at all the same thing, but I wanted to contribute after Ann's comment about a molded seat. These special tomato products come in different sizes, but they are not specially made for individual children. In fact, our EI group was trying to get us one from their closet, but it didn't work out.
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Karin Alex's Mom Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/ 
Last edited by KJKK8437 : 10-14-2008 at 09:48 AM.
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#6
10-14-2008, 08:43 AM
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What I like about the special tomato is it is adjustable to an extent by adding on diffrent pieces. Our therapist said it would work for Emma for years. We have the base and leg rest portion and diffrent head rests and there are adaptors to keep the hips appart or together. Its nice
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY
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#7
10-14-2008, 12:06 PM
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I really like this type, it's not a molded seat, but is very supportive
http://www.jcmseating.co.uk/pages/carrot.html
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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