More Alex pics -- trying something new

[KJKK8437]

Hi, yall. I've been working on updating that photo montage of Alex every day since his surgery. I've decided to post a link to the montage, and those of you that are interested in watching the distraction can check in to see the updates. That way I won't bug everyone by posting new pictures every few days.

Eventually I will edit it back down to a reasonable length, but for now I'm just adding new pictures every day. It will eventually get very long ... I know ....

Here is the link:

http://s299.photobucket.com/albums/m...t=80682912.pbr

[mylesmom]

You know, he actually looks pretty good! Perhaps not as scary as I thought........how does his chin seem to look? Does it seem to be making a difference yet? How long does it take to actually move forward?

[debvec]

wow...it is so great to see him smile. what a little cutie.

[faywrayy]

He looks great Karin! Is he eating any better???

[KJKK8437]

Originally Posted by faywrayy

He looks great Karin! Is he eating any better???

Angela, it is so disheartening. DH got him to agree to try to swallow some peach puree, but in his opinion, Alex doesn't know how to do it anymore. His tongue just isn't moving to meet the food anymore. I guess everything is changing too fast for him, and poor little A got so frustrated. For me, he just bats the spoon away. But then, there has always been that special "Daddy" thing.

I know he will regain it in time, but once again we are back to square one. Every time we do something to his oral sensation, we see a major step -- usually backwards, occasionally forwards. I imagine the decann will be exactly the same.

[KJKK8437]

Originally Posted by mylesmom

You know, he actually looks pretty good! Perhaps not as scary as I thought........how does his chin seem to look? Does it seem to be making a difference yet? How long does it take to actually move forward?

I can't say I see any real difference in the profile -- which is where I thought the difference would be. When he looks at me straight on, I do see that his overall face/head shape seems to be changing, though. The rate of movement is one millimeter per day for 25 days.

[JWorthington]

He's looking pretty good Karin Is he good when you turn the screws? I couldn't imagine having to do that with Sam, he'd totally freak out! You are all amazing to cope with this.

Julie x

[Hope]

I think he looks really good! What a brave smile!
Hope

[Ainsley's Mom]

Ouch. It looks a bit red around the metal. I hope it doesn't hurt him too much. You are brave Karin. I can't imagine having to turn those. But we all do what we have to right?. I hope these 25 days sail by quickly and it makes the difference you're hoping for. I will look forward to seeing the pictures on the montage. I'm glad he looks so happy like he's handling it all well.

[KJKK8437]

Originally Posted by Ainsley's Mom

Ouch. It looks a bit red around the metal. I hope it doesn't hurt him too much. You are brave Karin. I can't imagine having to turn those. But we all do what we have to right?. I hope these 25 days sail by quickly and it makes the difference you're hoping for. I will look forward to seeing the pictures on the montage. I'm glad he looks so happy like he's handling it all well.

Sneaky eye! Well, Susan, you picked up on something I hadn't posted yet, although I was getting around to blogging about it in a few minutes.. One of the distractor sites is infected. It's his left side, and most of the pictures have been on the right side, so it isn't all that obvious in the montage. The docs wanted to wait through the weekend to see if it got any worse or if it was just some sort of delayed healing. Alex is now taking a pretty high dose of Keflex for a week, and we are using Bactroban instead of polysporin. Already we are noticing a difference, and the side is starting to finally heal. Yay!