 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
09-20-2008, 09:54 AM
|
||||
|
||||
Headed to Denver tomorrow(Sun.)
We always drive out the day before so we can get settled before a week of docs!! Just appointments and a bronch this time. Hopefully no surprises this time!!!!! I will update when I can.
Tamara if you are reading I am gonna call you, I hope we can get together!!!  Seeing you and Calvin is the only thing I'm looking forward to!!!! lol
__________________
 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides. 
|
|
#3
09-20-2008, 11:17 AM
|
||||
|
||||
|
Hope it all goes well, have a safe trip and enjoy the time with your friend
 Julie x
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
|
|
#4
09-20-2008, 11:35 AM
|
|||
|
|||
|
Hope all goes well & NO SURPRISES! I hate medical surprises! Update us when you can.
~Maggie
__________________
Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
|
|
#5
09-20-2008, 11:37 PM
|
||||
|
||||
|
Prayers for a nice, normal appointment. Karen
__________________
Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
|
|
#6
09-21-2008, 07:32 PM
|
||||
|
||||
|
Hey there. We live in Denver and will be at Children's next Monday the 29th. If you are going to be admitted you will probably go to the 8th floor- if you are there we will stop by and say hi! Also on Saturday the 27th our "Mile High Tracheosto-mommies" group is meeting. I think we are going to go to the Children's Museum. We'd love to have you join us! Just PM me if you want more info.
Jen PS: I don't know where you are coming from (forgot to look before I hit reply) but fall is absolutely beautiful here. I hope you get a chance to take a drive in the mountains. If you need someone to watch Gretchen so you can do this let us know!
__________________
Mommy to a little miracle named Faith born 15 weeks too soon. Not so vent dependent anymore....  www.faithedona.blogspot.com
|
|
#7
09-21-2008, 08:33 PM
|
||||
|
||||
|
OH I wish we would be here on the 27th but we are driving home on the 25th. BUMMER!!!!!!!!!!!! We live out in the middle of Kansas. Last year we stayed a couple of days up in Estes Park before coming down to Denver for appt.'s. It was soo wonderful!! This year it just didn't work out though. Thank you soooo much for your offer!! I so wish we weren't leaving on the 25th!!!!
__________________
http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
|
|
#8
09-21-2008, 09:24 PM
|
||||
|
||||
|
Good luck! Hope all goes well!
__________________
 ~Marcie~Mom to Nate (8); trached at 5 wks due to chronic aspiration; CP, hypoglycemia (controlled with diet and meds), seizures, g-tube fed; Also mom to Brianna (16), Allison (14) and Delaney (3) My blog Life Is Good
|
|
#9
09-21-2008, 10:00 PM
|
||||
|
||||
|
Best of luck! Oh man, Estes Park in the fall -- heaven!
Hope
__________________
custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08  http://s307.photobucket.com/albums/n...t=4acb482c.pbw
|
|
#10
09-21-2008, 10:06 PM
|
||||
|
||||
|
Oh gottcha- sorry I misinterpreted your post. I'm so glad you got to go to Estes last year.
Have you been to the new hospital yet? If you have I am sure you know how beautiful it is. I hope you have a pleasant stay, the weather is unseasonably warm this week, so enjoy!Jen Like I said if you need anything please let us know. I can bring you guys a meal, drive you somewhere, etc. I work about 10 minutes from the hospital.
__________________
Mommy to a little miracle named Faith born 15 weeks too soon. Not so vent dependent anymore.... www.faithedona.blogspot.com
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 01:27 PM.