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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
09-05-2008, 04:54 PM
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We will try again!
Makiya's APN said we are going to try her on the LTV in a month that away she has time to grow and get stronger. I' am so proud of her she did so good. She surprised alot of people, peolple that thought she wouldn't have lasted as long as she did. She is a tough little girl, as all of these children are. She has had a good day so far no problems.
__________________
Leeanna, mother to Makiya  7/17/07, diagnosed with hypophosphatasia(a rare bone disease), trached 03/11/08, vent dependent , GT, tracheomalacia
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#2
09-05-2008, 08:59 PM
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Good for you and Makiya.
 Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#3
09-06-2008, 07:05 AM
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Just have to keep on trying...she'll get it!!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#4
09-06-2008, 09:14 AM
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I'm glad they have decided on a date to try again, sure next time she will be better. Way to go Makiya!
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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