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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
09-01-2008, 04:13 PM
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Just Praying!
They are hoping to try Makiya on the home vent this week sometime. I'm really nervous becasue this will be the 4th time she has been put on it, in the past she has failed terribly. the last time she was working on a second MET team call(medical emergency team). so I am nervous i just want it to work this time, i want her to be able to come home. Please just pray as all of you are in my prayers.
__________________
Leeanna, mother to Makiya  7/17/07, diagnosed with hypophosphatasia(a rare bone disease), trached 03/11/08, vent dependent , GT, tracheomalacia
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#2
09-01-2008, 04:16 PM
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Hope it works this time
 Julie xxx
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#3
09-01-2008, 04:19 PM
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Our prayers are with you!
~Maggie
__________________
Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.”
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#4
09-01-2008, 05:24 PM
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Hi Leanna,
Our thoughts and prayers are with you. i hope that things wrok out well for you all, please keep us posted as to maybe someone else has some advice about the trial on the vent thats not working...
__________________
Last edited by Kaylie : 09-02-2008 at 06:58 PM.
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#5
09-01-2008, 08:20 PM
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Praying that it works and she comes home where she belongs.
 Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#6
09-01-2008, 09:09 PM
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Prayers coming your way!!! I hope everything will work out.
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
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#7
09-01-2008, 09:45 PM
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Will be praying -
Hope
__________________
custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08  http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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#8
09-02-2008, 08:25 AM
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I'm praying for you. I hope it works so you can take her home.
Karol
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#9
09-02-2008, 09:47 AM
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She is in my prayers. I really hope you get to bring her home soon, that must be so hard. Good luck
__________________
LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#10
09-02-2008, 04:38 PM
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I hope your wee one manages on the vent this time!!
__________________
Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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