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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-20-2008, 01:08 PM
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Capping again
Tommy had to go back on oxygen again this morning, but we were able to wean him early this afternoon and at 1pm, we got the cap back on him. So far, so good. He's currently sleeping and I guess we will see how he does for the next couple of days.
New med added to his arsenal--Pulmozyme.
__________________
Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/ 
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#2
08-20-2008, 01:16 PM
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Fingers crossed (except when I have to type). Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#3
08-20-2008, 02:01 PM
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Hoping for the best!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#4
08-20-2008, 02:15 PM
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We had to uncap him during his nap and put a trach collar on him with room air. He woke up retracting and gasping through his mouth. His sats stayed good, and RT thinks he just got a little secretions stuck around the trach and couldn't breathe up and around them.
__________________
Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia. Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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