Has anyone used Respite Care without Medicaid?

[Michael's mom]

We are in DESPIRATE need of a break. Our nurses are all quitting or can't cover and we are pretty frazzled. I know Medicaid pays for up to 15 respite days (24 hour periods) per calendar year, unfortunately, I am not on Medicaid and my private insurance doesn't see the need....but that's another topic. I called the local ARC and they actually have someone who has worked with trachs. Has anyone actually used this kind of service? Did you feel comfortable enough to actually leave the house? Leave the town? Thanks in advance, Sue

[cariaad]

We get respite care vouchers thru a program called OAISIS I believe they have a internet website, I will try to look it up and post it for you. We get $400 in vouchers (paid directly to provider after services) each quarter.
Deb : Mom to Alli 20 mo w/trach-subglottic stenosis, 24 week preemie

[p's mom]

could you explain a little more about respite care and what type of care do they get?? Is it RN or LPN or just cn's?
I'm super curious as to how this works.

thanks
p's mOM

[cariaad]

The term Respite Care means just that-respite (a break) for the primary caregiver. The Oasis program lets you chose who you let do it. We paY $20 Hr when we can get an RN or $10 when it's a friend or family member. If you feel the person is trained to h andle your child's needs that is all that matters. The phone number I have is 1-800-426-2747. Im pretty sure its a nationwide program, not just here in Oklahoma. I know the amount you qualify for is based in part off of your income. Good luck, Deb

[p's mom]

I called today and this program is only good for Oklahoma residents and they didn't know of a nationwide respite program.

P's MOM