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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-15-2008, 12:06 PM
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Rough night
I almost called 911 last night. I have never seen Tommy struggle to breathe like he did last night. I kept hearing him cough off and on all night, but around 5 this morning, I heard him barking and wheezing. I picked him up and his teeth were bared, huge retractions, and barking deep down in his lungs. He looked so scared.
I gave him his Xopenex inhaler and started CPT. When he didn't get anything up, I ran him to the bathroom and turned on the hot water in the tub and sat on the floor pounding his chest and back. I realized he was panicked and trying to breathe through his little pinhole of a stoma. Once he started to relax, he started nose breathing again. He's still a little junky today, having his moments of fear to cough up his secretions through his mouth. I notice he gets like this when he's tired. I just have to keep him relaxed. If he keeps this up, I may need to call his doctors for advice. He's fine any other time, but sleepy time and can't move his secretions is really upsetting him.
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/ 
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#2
08-15-2008, 12:10 PM
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How scary! Praying that y'all can work your way through this time. Poor Tommy (and mommy)-
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08  http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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#3
08-15-2008, 12:23 PM
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Poor Tommy and poor mommy. I hope he learns to nose breath while asleep soon. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#4
08-15-2008, 12:49 PM
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That really does sounds scarey. Welldone though for staying calm and helping him through it. Hope this is not a daft questions but why do kids still have secretions after decan? Does is last long?
Hope things ease for you both. I guess its still all so new.
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Petra and Colin, Mum and Dad to Conor Feb 02, Imke Sept 04 and Kristof Sept 06 who was trached at 3wks old; arthrogryposis, Pierre Robin, G-tube. Previously vented for tracheamalacia, off since December 07.
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#5
08-15-2008, 12:53 PM
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I am glad you could remain calm. I guess Tommy will have to learn to completely breath through his nose - it is definitively an adjustement, Tommy will get it very soon - he is a tough and smart cookie
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
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#6
08-15-2008, 03:49 PM
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Have you considered suctioning through his nose or into his mouth to induce a cough to get the secretions up?
Poor baby and his mommy. You need your stress level to come down some- a break will be well deserved!!!!!
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Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#7
08-15-2008, 05:34 PM
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Quote:
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#8
08-15-2008, 07:22 PM
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What a scary night
 .That is the kind of troubles thar no one wants to pass. You know...I'm a little scary and apreensive about Inês surgery and possible decanulation in October...my depression is c oming up again
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Sónia Inęs Mom
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