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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-14-2008, 05:33 PM
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We've got a NEKKID NECK!!!
Everything went smoothly today! I don't have much time to post now, but things went well. She still hasn't napped, little stinker, so we still don't know how she'll do when sleeping, but nothing "exciting" has happened while awake (by that, I mean, no respiratory distress, no dropping sats, or anything else "exciting" like that).
Her bronch showed that her bronchomalacia was gone (YAY!) and she had no scarring/granulomas in her upper airway either (YAY!) Her heart echo was good too--I won't go into particulars, but nothing different or changed there either, although she's always monitored closely. Anyway, we're exhausted, but hoping for a quiet night. I'll try to update again soon, and once I have time after going home, I'll post nekkid neck pictures! Haven't had a chance yet to see it, because they have it covered. But hopefully we'll take a peek tonight when they change the dressing. Thanks SO much for everyone's support!
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Sarah, Mom to TWO-year-old Lucy (severe tracheobronchomalacia from congenital heart defects, 3 open heart surgeries, 2 cath balloonings, hospitalized for 8 months and 4 days but now HOME, trached/vented from 10/06-6/08, G-tube-dependent.) DECANNULATED 8/14/08!! Also Mom to 4-year-old Lizzy (healthy wiley ball-o-energy preschooler!) 
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#2
08-14-2008, 06:13 PM
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WOW !!!!!! i am thrilled for you all. what a day i am sure you all had and its still not over yet. best of luck while the little one sleeps that all goes well. please take care and when you get the chance to post a few pics we would love to see them.. thanks
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#3
08-14-2008, 06:34 PM
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Congratulations!!!!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#5
08-14-2008, 08:02 PM
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Congrats! Its so thrilling to see another kiddo with a naked neck. I can't wait for pics, hope tonight goes well
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#6
08-14-2008, 08:08 PM
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Good for you guys! Congrats Lucy
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#7
08-14-2008, 08:42 PM
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Hooray!!! I'm so excited for you guys!
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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#8
08-14-2008, 09:44 PM
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Congratulations!!!
 Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08 http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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#9
08-14-2008, 10:31 PM
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It truly is the summer of the naked necks. Congratulations. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#10
08-14-2008, 11:00 PM
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OH Sarah...that's so exciting!!! I hope your first night is as smooth as ours!!!!!!!!!!!!!
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Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - Follow decan at: http://sleepy-dogs.blogspot.com/
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