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  #11  
Old 08-12-2008, 09:23 AM
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beautiful. Tommy did great!
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Claudia - Mom to Sienna (4-22-07) and Sammy (12-14-2008).
Sienna was trached 9-27-07 for vocal cord paralysis. Right cord now moving.
Decannulated on 7-16-2008!
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  #12  
Old 08-12-2008, 09:47 AM
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Great video. It made me cry! Congratulations!!!
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Kristy
Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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  #13  
Old 08-12-2008, 09:55 AM
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OKAY, now I am REALLY crying at my desk!

I LOVE IT!!!! He kind of reacted how my daughter did-----like, "what the heck, where did my necklace go???"

It all happens so fast!

I am sooooo happy for you guys!!!!!

I will keep him in my prayers that he holds strong and keeps out the trache!!!

HUGS!!!!!!!!!!!!
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Michelle

Mom to Griffin (9), Reynold (5) & Anderson (3)Repaired BLCLP, midline defects & decanned 7/07
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  #14  
Old 08-12-2008, 10:32 AM
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All i can say WOW, Thats what Kaylie said when she watched the video !!! WOW.. I was a little nervous to let her watch because i thought she might get some ideas herself, like Tommy did the night before.. but she was Happy for him... as we all are...keep us updated when you can.. again i cant believe it..
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  #15  
Old 08-12-2008, 10:40 AM
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That's awesome! You were right he was a bit upset to see the drs come in, poor kiddo. He looks so good though, and I love how he felt his neck and got that kind of cute look like 'where did my trach go?" what a cutie. Congrats and I hope all continues to go well for him
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01)

EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY
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  #16  
Old 08-12-2008, 01:05 PM
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OMG!!!!!I think ive been under a rock!I had no idea he was going to be decanned so soon!!!!YEA!Tommy!Im so so so happy for you!He looks amazing!!!...............Angie
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Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!! .Ava 2 years www.aydenava.blogspot.com
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  #17  
Old 08-12-2008, 01:10 PM
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I just showed Ayden & he "Hi fived" Tommy on the computer!& said"No more trachy,just like me!".Love-it!!!!................Angie
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Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!! .Ava 2 years www.aydenava.blogspot.com
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  #18  
Old 08-12-2008, 02:31 PM
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Oh wow! Its really emotional to watch, brave Tommy and brave you! With regards to lab coats and blue scrubs, the docs only have to come in the door without even laying a hand on K and he wails! Wishing you all continued strength for a trach-free Tommy
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Petra and Colin, Mum and Dad to Conor Feb 02, Imke Sept 04 and Kristof Sept 06 who was trached at 3wks old; arthrogryposis, Pierre Robin, G-tube. Previously vented for tracheamalacia, off since December 07.
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  #19  
Old 08-12-2008, 04:28 PM
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That's great. I hope he goes from strength to strength!
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Kate,

Mum to:
Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met.
Pics and vids
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Juliet 28/9/99 perfectly healthy and beautiful
Alasdair 28/9/10 Delightful, easy-going boy

I'm a 'dawk'

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  #20  
Old 08-12-2008, 05:03 PM
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Really really great!!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/

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