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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-21-2008, 11:21 PM
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Home at last
Well, I need to learn to keep my mouth shut....yeah, like that is going to happen. Joseph has not been in the hospital in over 5 years for an unscheduled visit. Well that all changed last week. Wham bam and a swollen arm and in he went. First night he was sent hme. I was angry, Next day I was not so nice and said he was not going home till we had answers and he had pain under control.
Poor baby....it took several cut downs to secure a good vein. He had a bone infection from hand chewing....his form of dealing with anger or frustration. We have fought him for years on this. Usually we win, this time he did in his own way. Well he got started on that nasty Roceferon...probably spelled wrong. He was one angry puppy. Took two days to get him to where he would sleep at all. He was just in so much pain. He is now home. The vein blew and I would not allow any more cut downs so he has about 9 days left of shots in the legs. Still painful but all in all easier than loosing the vein again, and the doctor is sure we will loose it. Good news, the little ninny has actually gained 3 pounds in three months...an 8 year old that nows weighs 33 lbs...we are on a roll here. I know I have a lot of catching up to do....will start working on it. Hugs, Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count...  Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all. http://www.merrillsimonfamily.blogspot.com/ 
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#2
07-21-2008, 11:27 PM
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Sorry. I am tired and I see that I have posted about this already. We did end up back in the hopspital and that is how I forgot....again sorry for a basic repost.
hugs, Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count... Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all. http://www.merrillsimonfamily.blogspot.com/
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#3
07-21-2008, 11:30 PM
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It's been a l-o-n-g few days it sounds like. Glad y'all are finally home!
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08 http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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#4
07-21-2008, 11:35 PM
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Welcome home...now deep breaths for the next 9 days!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#5
07-22-2008, 12:40 AM
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I'm glad you made it home. I hope you can get some rest now.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#6
07-22-2008, 06:54 AM
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I am so glad you are home. But, uuuugh. That was gut wrenching for me to read I can't imagine watching it or what he was going through.
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Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#7
07-22-2008, 07:26 AM
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I am glad you are finally home and congratulations on the weight gain!!!
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
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#8
07-22-2008, 08:03 AM
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No apologies needed, hospitals do that to you. Sorry the vein blew and you are stuck giving the shots. Poor baby. Good to hear about the weight gain. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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