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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
05-03-2002, 09:26 PM
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Please do not mind my spelling, I am sitting here with tears streaming down my face.....I should not even be here I am sure.....I just feel so lost and alone......
Angel had a conversation with me (well the best should could most was in Sign).......She told me she was tired,,,,I told her it was ok and she could go to sleep....And if her Dad came on line I would wake her up......She looked and me and said no...... She means she is tired of the fight.....She told me it was time to go and see Teddy (Her Dog in Heaven)..... She asked if it was ok if she said Good Bye (we NEVER EVER use that word,,,,,As long ago she hated it and to her Good Bye was Forever)...... It was the hardest thing I have ever done.....I told her if she was ready to go to Heaven it was ok with me.....I had to choke back the tears....... Rite now she is sleeping.....I am so scared she will not wake up,,,,,,Has she given up?.... Sorry I have to go,,,, B 
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*Husband to Angel who is 24 Cystic Fibrosis, Epilepsy, Turners Syndorme, (alot of things rolled into one),CVI, Hearing Impaired,3 Strokes, Brain Injury,G-Tube, Trached and Vent Dept 24/7* *Most People Dream of Angels, I get to Hold One Daily!!* 
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#2
05-04-2002, 02:30 PM
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Oh, Brandon, you break my heart! Our prayers are with you and with Angel. She has suffered so much, and so have you. You are lucky to have experienced a love as rare as the one you share with your dear, sweet Angel. Please know that we are with you and with Angel in spirit. You DO belong on this board, and anything you post is welcome. We are here to support each other - in good times and in bad. Hugs, Susan
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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