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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-07-2008, 04:41 PM
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Funny tube change
Yesterday afternoon we did our normal weekly tube change. It was John's turn to put in the new tube. Sam was being a ham as usual and playing us up. He just lay on the floor laughing and waving his arms and legs in the air. Well, I took the old tube out and he just lay there laughing uncontrollably, put his chin on his chest and of course, John couldn't get the new trach in. it was out for a good couple of minutes and Sam was fine, just kept on laughing. John got a little freaked out but then he did get the tube in which made poor Sam cough a lot and throw out loads of gunk. But I am just so excited that the tube was out and he was fine
 Unfortunately the pulm wants us to go through a winter without O2 before we remove the trach, I can understand that, but Sam is so ready to lose that trach now.Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child 
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#2
07-07-2008, 06:36 PM
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Hope the winter flys by and spring brings a naked neck!
mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.  Also mom to Makayla age 8 and summer2 www.caringbridge.org/visit/alissa
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#3
07-07-2008, 06:54 PM
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What a silly boy! And poor John! He must have had sweaty palms by the end of it. I can understand the Dr wanting to get through a winter without that O2. Hopefully this next spring will be your turn for decan!
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Sarah, Mommy to Malakai (9), Aubrey (8), and Keturah (6) trach, vent, Chiari I, BVCP, CCHS http://s109.photobucket.com/albums/n73/lovemymak/  
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#4
07-07-2008, 07:46 PM
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Sounds like things bode well for a nacked neck next spring!!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#5
07-07-2008, 08:58 PM
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Does this mean we are lining up for Naked Necks 2009? That is such good news. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#6
07-07-2008, 11:25 PM
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Exciting, encouraging news!
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08 http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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#7
07-08-2008, 01:53 AM
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That's so great Julie! That's got to be a relief to know that he would be okay if it came out by accident. Spring will be here before you know it. Although if it were me I think every minute would be ticking by in my head.
 Hope you're able to get it off your mind.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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