Pediatric Tracheostomy Home Care Guide at Amazon.com


Go Back   Aaron's Tracheostomy Message Board > Pediatric Tracheostomies

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

Reply
 
Thread Tools Display Modes
  #1  
Old 07-02-2008, 10:22 PM
TommysDad TommysDad is offline
Senior Member
 
Join Date: Sep 2006
Location: Oak Forest, IL
Posts: 1,344
Default trach change

Tommy has a Bivona. We've had a hard time before getting the trach swivel/elbow off the Bivona trachs before, but nothing ever this bad! Maggie tried everything to get the trach seperated from the elbow, but not even the wedge would work! The elbow was so tight up against the clearish/bluish trach ring, you couldn't even get the wedge inbetween the trach and vent To make it worse, Tommy is so snotty right now! He's got snot everywhere, and it must have acted like superglue to the trach & vent! It was either Maggie do an emergency trach change (Tommy had no nurse & Tom was at work), or do what Maggie did instead, pry the hard plastic part off the Bivona along with the elbow.

Later that night, when both parents were home, we still tried to pry the two pieces apart. We soaked it. EVERYTHING. Still wouldn't come apart! We knew we were going to have to do a trach change because there was no way the trach was ever going to be intact again. However, this trach change was different for us. Tommy usually sits so nicely in a chair watching Signing Time videos while we do trach care and lays down in his crib when we do a trach change. But we decided to try a trach change sitting up. (Correction, Tom decided to do it! Maggie was too nervous to try it!) We don't think Tommy even noticed the trach change. His eyes were glued on the tv the entire time! Is this the start of something new??? Or did we just get lucky???

Way to go Tom & Tommy!
__________________
Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09.

CarePage: BabyBoyce

“With man this is impossible, but with God all things are possible.”
Reply With Quote
  #2  
Old 07-03-2008, 01:13 AM
Ainsley's Mom's Avatar
Ainsley's Mom Ainsley's Mom is offline
Senior Member
 
Join Date: Feb 2007
Location: Seattle WA
Posts: 6,523
Default

I don't understand the part about the Bivona but it sounds stressful and I'm glad it worked out okay.

I hope the upright method continues to work so well for you!
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).

Blog Link:
http://ainsleyrae.blogspot.com/
Reply With Quote
  #3  
Old 07-03-2008, 07:57 AM
Jacob's Mom's Avatar
Jacob's Mom Jacob's Mom is offline
Mentor
 
Join Date: May 2003
Location: Atlanta, GA
Posts: 4,469
Send a message via Yahoo to Jacob's Mom
Default

Jacob had a Bivona for a short time and we had a few problems with the swivel getting stuck. Never so bad we couldn't get it off, but it did get stuck at times. Hopefully you won't have that problem again.
__________________
Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.

Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 08:01 AM.


Disclaimer: The information and resources on Aaron's Tracheostomy Page, Aaron's Tracheostomy Message Boards and the Trachties Listserv are for educational purposes only. This web site and its resources are not engaged in rendering medical, pharmaceutical nor therapeutic advice or professional services. The information provided through these pages, message boards and listserv or any links from this web site should not be used as a substitute for professional advice by qualified doctors and/or therapists.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2013, Jelsoft Enterprises Ltd.