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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-24-2008, 09:56 PM
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We are home!! A day early even!!
Thank you for all your thoughts and prayers, they worked!!
Once again our experience at Childrens hospital in Denver was beautiful! The staff is incredible!! They spent tons of time with us, nothing was rushed!! The anasthesiologist was the best ever. He listen to what we had to say about her waking up always being so henious and guess what???? For the first time ever she woke peacefully!! The ASD turned out to be way smaller than previously though so they did not have to patch it!! They ballooned the lpa and we will follow both lpa and ASD closely. We didn't even have to stay the night!! Celia did wonderfully! She is tired but otherwise in good shape! I got to meet a wonderful mommy of THE cutest little trach baby! It was great!!
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 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides. 
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#2
06-24-2008, 10:01 PM
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WOW! I am so happy that everything went so well!!!! Get some sleep now....contining to prayers.
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Angela  Homeschoolin' mom to 5 hobbits (Jonathon 4, Noah 7, Madison 19mths, DeeDee 18, Travis 20)Jonathon 4yrs old with CHARGE Syndrome. Trach, g-tube, had the Nissen 06/06. Hernia repair 03/08 Lots more, but too much to list.
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#3
06-24-2008, 10:06 PM
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Gretchen... so glad all went well. Were you a little warm??
 Do you stay close by Children's? Isn't the new hospital a WOW! Glad you had a safe trip and it was a success.
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Dawn  former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 -  Follow decan at: http://sleepy-dogs.blogspot.com/
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#4
06-24-2008, 10:24 PM
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Dawn,
We stayed out at Country Inn and Suites. It's new and very nice! I LOVE the hospital!! It is so bright and cheery!! Ya know I didn't think it was too warm when we were there but my aunt who lives there came by and she made the comment that it was so warm and humid! All I could think is that she must have forgotten what it's like in our part of Kansas!! My skin was about to fall off from it being ssooooo dry out there!!lol It is pretty humid where we live and I have always thought humid heat is worse than dry heat.
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http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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#5
06-24-2008, 10:41 PM
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Quote:
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Dawn former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - Follow decan at: http://sleepy-dogs.blogspot.com/
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#6
06-25-2008, 03:38 AM
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Sounds great - it's nice to have a positive hospital experience, glad it went well.
Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#7
06-25-2008, 05:43 AM
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Hi,
i am so Happy things went well and better than anticipated, that is so awesome. I have been thinking about you all so often, knowing all the worry you had before you left. I am so thankful you guys are home and safe. please taje care and get some much needed rest.
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#8
06-25-2008, 06:04 AM
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I am so glad everything went well and that you made home early.
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
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