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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-07-2008, 01:31 PM
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Trach Tie Question?
I have come to a problem. Kara has always worn the Dale neo blue trach ties. But, since they have changed to the duck ones and discontinued the other we are looking for something else. I HATE the velcro on the duck ones and I don't think they stick as well. They sent us the posey ties and I don't care for them either. With as thin as they are on the sides then velcro rubs Kara's neck. I don't think she could wear the Adult dale ties (she used to when she was on the vent) because with the elastic she could pull her trach out easier. I have heard of marpac but don't have any idea whatthey look like. Can anyone describe them or have a pic? Or know of any other kind?
Thanks!!! Rachel
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Rachel mama to Kara Beth April 9, 2004 Laryngomalacia, High pallet, FINALLY vent free (8/05), Precious Smiley Princess who will tell you like it is!!!! & Timothy Sept 2008 Healthy as could be Also expecting again due in June 2010  
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#2
06-07-2008, 03:04 PM
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We have always used the adult dale trach ties. Even when Joseph was tiny and for 8 he is still tiny. We just cut them in the back and away we go.
See if you can try a few of them for Kara Beth. Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count...  Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all. http://www.merrillsimonfamily.blogspot.com/
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#3
06-07-2008, 03:56 PM
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We only used adult Dale ties so I know nothing about other ties. We now use sterling silver necklaces.
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 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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#4
06-07-2008, 03:58 PM
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This is what we use. Although I'm confused because our product SKU is 0814-8218 and that one is not listed on their website. It is the infant size. It does not have that dressing attached. It's just a 2 piece velcro tie. The velcro sticks well. We like them a lot.
http://www.birdcronin.com/index.php?page=shop.product_details&flypage=shop.f lypage&product_id=202&category_id=53&manufacturer_ id=0&option=com_virtuemart&Itemid=34
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#5
06-07-2008, 05:25 PM
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The PediDucks stretched too thin for Angus so the velcro stuck out either side and cut into his neck. The PediStars (next size up) was perfect and the velcro stuck extremely well - it was actually hard to undo! Angus is ventilated 90% of the time, so if it stick with that and all the pulling and tugging his trach gets as he toddles about, then the velcro must be pretty good.
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#6
06-07-2008, 05:41 PM
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Hi.
we use a one piece trach tie made by pepper medical its a pediatric size P301, and Kaylie has a pretty small neck.i like it because it is a one piece. i could send you a few to try if you want..
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#7
06-07-2008, 05:53 PM
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PM your address and I'll send you a few Marpac's to try. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#8
06-07-2008, 06:09 PM
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I've always used trach tie twill tape. Cut it and tie it. It doesn't come undone and can't be pulled off-you have to cut it. Various widths available.
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