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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 05-02-2002, 06:58 PM
Gretchen(Celia's mom)'s Avatar
Gretchen(Celia's mom) Gretchen(Celia's mom) is offline
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Margee,
Wow what good news!! I can see being scared too. I don't have any advice I just wanted to say congrats and good luck. Our thoughts and prayers will be with you!!!!!
Gretchen
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Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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Old 05-03-2002, 08:27 AM
Michael's mom Michael's mom is offline
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No experience with this, but lots of good wishes going your way! Sue
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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