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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

05-14-2008, 09:02 AM
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Member
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Join Date: Mar 2007
Location: iowa
Posts: 562
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Jordan had ENT appointment
Well guys yesterdays appointment was the important one. Jordan will be having surgery not sure when. Her ent looked at her cords and there still not opening up all the way when she gets mad. So her ENT will do the laser surgery on the back of Jordan's cord. It will be just on one side and a very small amount will be cut away. First she will see if there is any tissue growing araound the trach before the "actual" surgery even starts. Then Jordan will be in the hospital however long she needs to be. Her in ENT won't let her out till she is back to herself. From what I can remember she will get the trach out w/ this surgery. So yeah I'm happy, but scared as ........... .I also have to get this set up for my other kids as well and chris may be w/ me for the first wk, but who knows. We are going to try and schedual it asap, but we'll find out what they have open. I will give u a date when we get a date set.
Thanks for reading.
__________________
Vennesssa and Chris
Married on June 5, 2004 ~ going on 4 yrs but feels like 50 yrs
KIDS
Stepkids- Morgan 14, Brooke 11
Mine- Randy 11, Christian 8
Ours- Ashley (stillborn 4-9-05)  ,
Jordan born 6-10-06-(bi-lateral paralized vocal cords)  trached on 6-23-06
Decanned on 8-20-'08, Had laser sugery to fix the cords. The back half of one side is gone for now, but will grow back in time.
My site
http://www.myspace.com/mom_2_angels
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05-14-2008, 09:06 AM
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Senior Member
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Join Date: Jul 2007
Location: Vienna, VA
Posts: 2,227
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That is great news happy and scary at the same time, but she seems to be in great hands. I am sending good vibes your way and wish you the best of luck with everything
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps
https://www.babiesonline.com/babies/c/cedric1/
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05-14-2008, 09:42 AM
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Senior Member
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Join Date: May 2007
Location: Cochranton, PA
Posts: 4,870
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Keep us posted, this sounds like another naked neck in the making. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel.
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05-14-2008, 09:42 AM
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Senior Member
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Join Date: Apr 2007
Location: NJ
Posts: 2,549
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That's a big step for you! Hope it works out great!
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/
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