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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

05-08-2008, 10:05 AM
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Location: Home of the OU Sooners!
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Dale Trach ties/call from DME
My DME just called, they told me they had to read me a letter that was sent to them by the makers of Dale trach ties. It has all these fancy terms but it basically said
Do not cut the velcro portion of the ties, doing so will lossen stitching and can lead to possible decanulation. Its ok to cut the foam portion but not the velcro. If you cut the ties, and something happens Dale is not to blame.
They said that Dale is ordering that all DME's contact their patients regarding the practice of cutting velcro, or to teach that cutting it is bad to all new patients.
Now we don't cut the velcro tabs, we are lucky we don't have to anymore, but I know lots of people still do. I say what works for you works for you and to keep doing it but I just thought I would pass this info along.
Did anyone else get this info from your DME?
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01)
EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY
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05-08-2008, 11:19 AM
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Location: Moore, OK
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Havent heard a word, but we ordered MarPac last time. deb
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Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
[IMG]
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05-08-2008, 11:31 AM
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We got the same letter months ago. Not sure why they had to read the letter to you instead of mailing it to you. 
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05-08-2008, 11:38 AM
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Location: Louisville,KY
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Nope, no info from our DME but not really all that surprised.
I have noticed the skinny pieces that thread through the flanges on new duckie ties "roll up/off" quickly (within a day) unless I trim off the points.
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May Mommy to Sebastian(1-24-06), hardcore former 26 wk preemie, had and kicked butt of many issues, dealing with a few more , including autism. Trached 4/16/06 @ 3 months due to severe BPD and mild Tracheomalacia. Decanned 9-9-09 and doin' just fine !
http://sebastiansjourney.blogspot.com/
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05-08-2008, 11:49 AM
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Quote:
Originally Posted by Ann
We got the same letter months ago. Not sure why they had to read the letter to you instead of mailing it to you. 
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Oh I forgot to add she said they would be giving them out when they came for our vent checks, but just recieved them and had to notify everyone right away, I am sure that is more their own legal dept and not Dale's saying with the phone call part.
Wow months ago? Mine just got it today, scary! Oh well lots of DME's to tell I guess. Not like its a surprise, I knew they could tear at the seams if cut, have had it happen, thankfully no decan. That is when we used to cut them months ago
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01)
EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY
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05-08-2008, 11:53 AM
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Location: Medford, NJ
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I actually had been in contact with Dale about 6 months ago or so about the old neonatal ties (pre-Ducks) because they virtually shreded when cut. We even had a thread go in the stoma once during a trach change. They had me send the specimens back.
Since the ducks came out, we haven't needed to cut them anymore because they are "pre-trimmed." However, I do have a sign up in my son's room instructing the day nurses not to cut the ties in any way because of that problem. We, too, got the disclaimer/warning letter.
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Uggs
Last edited by connor'smom : 04-29-2011 at 10:19 PM.
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05-08-2008, 11:59 AM
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Wow now I am starting to hate my DME here is something that has been known to you guys for months and I am just now hearing it? They said they got the news today, so either they are super slow and lying or Dale is slow getting word out
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01)
EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY
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05-08-2008, 12:00 PM
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Join Date: Jul 2007
Location: Monroe, GA
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What does DME stand for? I know it means your supplier, but I feel stupid that I can't figure out "DME" and it's bugging me!  Something obvious I'm sure!
Hope
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05-08-2008, 12:05 PM
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Location: Virginia
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Quote:
Originally Posted by Hope Reese
What does DME stand for? I know it means your supplier, but I feel stupid that I can't figure out "DME" and it's bugging me!  Something obvious I'm sure!
Hope
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"Durable Medical Equipment". The word missing, really, is "supplier"!
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Karin
Alex's Mom
Alex born 6/19/2007, PRS, Trached and GTube at 3 weeks, palate repaired 12/20/2007, failed decannulation 5/7/08 due to undiagnosed suprastomal collapse, jaw distraction 9/9/08 (insertion) to 10/30/08 (removal). Single Stage LTP 2/17/09 and now member of the Naked Neck Club. Need a laugh? Check out http://itsallgoodtoday.blogspot.com/
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05-08-2008, 12:20 PM
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Mentor
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Join Date: May 2003
Location: Atlanta, GA
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Interesting. We haven't received a warning letter, but we have always used Dale ties and we have always cut the velcro. We have never had a problem though, so I think I will continue to do so.
Thanks for passing along this information.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.
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