 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
| View Poll Results: pulse ox or no pulse ox - are you using them | |||
| use pulse ox only at nap time |
  
|
0 | 0% |
| use pulse ox only at night |
  
|
12 | 34.29% |
| use pulse ox all the time while sleeping |
  
|
9 | 25.71% |
| use pulse ox all the time (always on) |
  
|
3 | 8.57% |
| use pulse ox only for a spot check |
  
|
5 | 14.29% |
| never use them |
  
|
6 | 17.14% |
| Voters: 35. You may not vote on this poll | |||
 |
|
|
Thread Tools | Display Modes |
|
#1
05-01-2002, 07:41 PM
|
|||
|
|||
I've been thinking about the use of our pulse ox and wondered what other do and how you use your pulse ox.
Thanks for helping me!! take care P's MOM 
__________________
Parker, 3 Yrs. old., trached at 3 months (Nov. 2000) due to VC paralysis/paresis, DECANNULATED 9/5/03. A great litle guy who loves Hulk, Spiderman and is mommy's true love !!!!! (Page 8 of Aaron's Page) 
|
|
#2
05-01-2002, 07:47 PM
|
|||
|
|||
We were not assigned a pulse ox when we left the hospital. I wish we had even though in the hospital it is the most sensitive machine as far as setting off the alarm. I would like to have one now just to see if her sat. go down when we cap her. In the hospital they do sat. when they tried to decan her. (Tested her by capping) She didn't do so well, even though her sats are always high without it. They say take the cap off when she is not handling it, but I sure would like to see her sat. to be really sure.
|
|
#3
05-02-2002, 04:26 AM
|
||||
|
||||
|
We finally got the ok to have the DME pick up our O2, pulseox and compressor for humidity! We ahdnt used any of it since Jan. and then only briefly when we were trying overnight continous feeds thru g tube which caused Alli to desat. initially. When we first came home we didnt have one, and it took switching peds twice to get a RX to have one --she was on O2 at night but came down with pneumonia and needed it durng day while sick and we wanted to have it to know if she was doing ok while getting off the O2. For some reason they dont like to send them home--we were told we should learn to tell by her appearance if she's satting ok, but that's prettty hard at first, especially at night unless yoiure lucky enough to have a kiddo who doesnt wake up when you turn on the lights! Anyway...Deb
__________________
Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
|
|
#4
05-02-2002, 09:04 AM
|
|||
|
|||
|
We always use one when he's sleeping and sometimes when awake but tired or sick. I would highly recommend anyone who does NOT have or use a pulse ox to use one esp when your child is sleeping. Our doctor said that prolonged sats below 92 will eventually cause an enlarged heart, as well as damage to the liver and kidneys. Our son "looks" fine in the 80s and if I did not have my pulse ox to show desats in sleep, I wonder what type of damage I would be doing to his other organs? Just something to consider.....also, if your child is under a year old, I would never consider not using it. I would die of guilt if my child died of SIDS or ended up having brain damage because I did not know he was desatting. Call me paranoid, but I have enough problems with just a trach! I'll have a hard time when they take it away! Sue
__________________
Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
|
|
#5
05-02-2002, 09:33 AM
|
||||
|
||||
|
We have always used one. Celia used to have it on all the time until she became mobile, then only while she is sleeping. I would never consider not having it!!!!! Gretchen
__________________
 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
|
|
#6
05-02-2002, 01:29 PM
|
||||
|
||||
|
Just a p.s. as all cases are obviously different...Alli never satted below 92 except during the disasterous g tube feeds. Even while sick with RSV she hoovered at 92-93 on room air (her normal sats are 98-100) and O2 brought them up to normal during the sickness. So, I have just one more reason to count my blessings! Deb
__________________
Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
|
|
#7
05-03-2002, 05:55 AM
|
|||
|
|||
|
We don´t have a pulse ox at home.
So her sats are controled only when hospitalized.
|
|
#8
05-05-2002, 08:39 PM
|
||||
|
||||
|
I'm with you Karsten
I can't imagine any hospital releasing a trach child home without having a pulse ox. I know before we were realease the RT emphasized the importance of having it on when he was sleeping in case he developed a plug. Jimmy wears it all the time when we are at home as he is not mobile and its just as easy to keep it on. When we go out we usually don't take it unless we go to the doctor so they can see when they really piss him off. One nice advantage of having one other then the fact to know if he is in distress when sleeping is at night you can tell if he wakes up and really needs attention or if he will just fall back asleep by watching his heart rate. If I didn't have one to use when my child was asleep I would request one right away. I can't imagine a insurance company not paying for this piece of equipment. Take care Anne, mom to Jimmy Logan, 2 !/2, Guillain BArre Sydrome, trach, vent dependent, g-tube
__________________
Anne, mom to Jimmy (9) Infantile Axonal Poly Neuropathy, trach, vent dependent, g-tube, scoliosis and spinal fusion with growth rods
|
|
#9
05-06-2002, 06:01 PM
|
|||
|
|||
|
OK- I don't mean to sound stupid or anything but a pulse oximeter is the thing with the little red light that they put on their foot or finger to test saturation only, right? We have an apnea monitor which measures breaths per minute and heart rate. I would like one for use when plugging and using the passymuir valve, but my doctor in PICU never requested one. Is this a bad thing?
|
|
#10
05-07-2002, 08:44 AM
|
||||
|
||||
|
Karsten, I wouldnt call anyone irresponsible. We come here for mutual support and advice--NOT judgement. Every case is different and requires different care. No one can stand in another parents' shoes. Deb Mom to Alli 24 week preemie p 8 Aarons
__________________
Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 12:46 AM.