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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
04-29-2008, 09:35 PM
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Bread, cookies, cute trach kids and going home!
Yesterday we had a wonderful visit with Robin and her husband. Robin brought us some delicious homemade bread. Parker ate about half the loaf today after his MLB. He gobbled a pack of graham crackers and then he started in on the bread and I didn't think he was going to stop.
This morning, we had our scope. Dr. Cotton said things looked perfect and that we don't have to come back for three months. Of course, I double checked that with him because I couldn't believe that was what came out of his mouth. So, we are staying tonight and leaving in the morning. We saw Tommy on his way into the OR. And on our afternoon rounds of the B5 floor we found Miss Sienna's room and had a visit. She is adorable. Parker, the kid who flirts with every nurse, wasn't sure what to do with her. I don't think he believed me when I told him that chicks dig scars. To top off our cute trach kid tour, we ran into Jennie and Hannah downstairs so they sat with us while we ate lunch. It was a very busy day for Parker, socially. Cookies. Let's not forget the cookies. Today Parker was finally allowed off of the floor so we went to the cafeteria for lunch and for the first time since we've been here they had DOUBLE CHOCOLATE CHIP COOKIES. I got some in honor of Deb and I hoarded them all to myself this evening! That's all. I'm tired and glad to be going home. I miss the big boys and so does Parker.
__________________
Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#2
04-29-2008, 09:55 PM
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 What a day! - Not back for 3 months?  That's SO great. Especially considering your move! I bet you'll be glad to get back to the big boys.  And put your feet up!
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#3
04-29-2008, 10:05 PM
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What a nice thing to have a fun day as your send off! And a three month reprieve -- what a deal! I think someone should bring double chocolate chip cookies to the trach conference!
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08  http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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#4
04-29-2008, 11:07 PM
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Suzanne,
I gotta stick with you. You saw everyone today. Glad to hear Parker likes the bread, did he let you have any at all? That's wonderful that you don't have to come back for 3 months. That's amazing. Good thing you doubled checked with Cotton. Sometimes you gotta make sure you actually heard what you think he says sometimes. Have a safe trip home Robin
__________________
Former 24 weeker, decannulated 2 times, retrached Feb 2006. Mom to 4 crazy kids: Owen 8, Hanna, Bailey and Olivia 6 yr old triplets. Always striving for the perfect airway!  [/url]
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#5
04-29-2008, 11:59 PM
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Suzanne ... glad to hear Parker is doing so well and you are headed home. But, I'm hoping to see you back in Cinci in about six weeks, yes?
__________________
Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#6
04-30-2008, 02:01 AM
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Congratulations on going home! I wanna see a pic of that nekkid neck boy!
__________________
Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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#7
04-30-2008, 06:20 AM
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wow!!! I am so happy that you are on your way home and don't have to go back for 3 months. That is awesome!!! It is so great that you got to meet so many of the gang on the board. And finally....you rock eating those double chocolate chip cookies. We finally just made some on our own here and scarfed them down. Eat and enjoy!!!
Amanda's mom, deb.
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#9
04-30-2008, 06:30 AM
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Lots of good updates. I'm glad things are going so well. How fun that you got to meet so many trach friends. Have a safe trip home and enjoy the hugs from your boys!
__________________
Has a daughter who is vent dependent.
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#10
04-30-2008, 06:44 AM
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Congrat's!!! I am so happy for Parker. You must be so excited to be escaping!!! Good luck!!
__________________
Mom to Seamus (11/15/06) trached at 5 months for subglottic stenosis and Devin 13 years old. My boys are wild! Single LTP on May 8 2008- successful decann. awoken MAy 16 NO TRACH!!!!!!!!!
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