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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#11
04-20-2008, 08:08 PM
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it will be here before you know it!
hope things go smoothly, I will be keeping my fingers crossed for a successful procedure and a quick recovery 
__________________
Christina mom to Max born 01.19.05 @ 24wks LTR 03/22/2007 LTR 07/15/2008 decannulated, but uses CPAP while sleeping 
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#12
04-20-2008, 10:33 PM
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Love the idea of admitting him the night before! That should make things flow so much easier. Best of luck!
Hope
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custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08  http://s307.photobucket.com/albums/n...t=4acb482c.pbw
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#13
04-20-2008, 10:49 PM
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I was thinking about you guys just this morning , wondering when his surgery was. You will all be in my prayers all day Friday , try to drop us a line to let us know how things go if you get a chance.
Isn't waiting always the hardest part....
__________________
May Mommy to Sebastian(1-24-06), hardcore former 26 wk preemie, had and kicked butt of many issues, dealing with a few more , including autism. Trached 4/16/06 @ 3 months due to severe BPD and mild Tracheomalacia. Decanned 9-9-09 and doin' just fine !  http://sebastiansjourney.blogspot.com/
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#14
04-20-2008, 11:39 PM
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Wow Rene. It seems like just yesterday you were having to reschedule. I'm so excited for you and Tommy.
Wow there are a lot of LTPs this year.
__________________
SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#15
04-21-2008, 09:14 PM
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Best of luck with the LTP. Those first sounds are something I will ALWAYS remember. That and the giggles down the hall from the girls getting in trouble, he he).
Hoping and praying that things go smoothly and he is home soon. (Did Dr. White train in Cinci by chance? If so, I know who he is...good MD!) Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#16
04-21-2008, 10:10 PM
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Quote:
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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#17
04-21-2008, 10:23 PM
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Prayers!! Can't wait to hear how it goes!!
__________________
 http://mamazgirlz.blogspot.com/ Gretch mom to, Heather(22), Aimee(19), and Celia(14) Dandy-Walker syndrome,cleft palate(repaired at 9 yo!),t-tubes,asd, left pulminary arterial stenosis,trach,aspiration,reflux,fundo,g-tube,npo,dysphagia,kidney defect,neurogenic bladder & bowel,spina bifida,scoliosis,seizures,hip dysplasia, sensory issues, ADHD,vasomotor rhinitis,autistic like behaviors, hearing aides.
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