Just a few more days!

[TommysMommy]

I can't believe how fast the days have blown by us! Tommy's LTP is Friday! I know I was upset last month when he got the flu and we had to wait, but now I am so glad it happened that way.

My mother in law (also known as my guardian angel and Super Grandma) is leaving Wednesday to drive down here from KY to help take care of the kids and to trade off with me at the hospital so Tommy doesn't ever have to be alone. She is hoping nothing comes up last minute to postpone her trip because she wants to be here Friday morning during his surgery so we can sit together.

I want to thank all of those parents here on the boards who've gone through this, especially lately. You've been very insightful about what to expect. I've been reading blogs and carepages all month trying to get a grip on what I will be dealing with. To be honest the surgery itself doesn't scare me. He's been through open heart surgery twice, plus several other procedures, so I've become a little numb to all that comes with that. The recovery process is the part that stresses me out.

More than anything, I'm most excited that Dr. White is going to be removing the granuloma that sits right at Tommy's vocal cords. That granuloma is the reason Tommy can't move enough air to vocalize. I can't wait to hear those first little squeaks and squeals. I haven't heard him cry since he was about 2 weeks old. I know it won't be right away, but just the fact that he will have the ability to vocalize excites me to no end. It's been a battle trying to get him to the OR between heart surgeries to just remove the granuloma. If he didn't have it we could have been using a PMV for months now.

So, here we go. Counting down not weeks, but DAYS! I'm really glad they are admitting him the night before. It makes it easier to deal with. I don't have to worry about stopping feeds or anything like that. He will be put on IV hydration once he's admitted Thursday night, which is a request from his cardiologist. I'm starting to feel my nerves. Lots to get ready, and even more that have to wait until the last minute. Thank goodness we live in the same town as our hospital. I thank God in my prayers all the time for that blessing.

[suzanne2545]

Wow! Rene. Less than a week. I'm so glad that your MIL is there to help and support you and your other boys. It makes a difference not to have to worry about your other kids when you are trying to focus on the task at hand. Hope this last week goes by quickly and without issue! I can't wait to hear all about it.

[drct1245]

Good luck to you and Tommy - I hope things go smooth.

[faywrayy]

Tommy is having a double stage, right? I am anxious to hear your experiences with the surgery and recovery. Kate's double stage is 12 days away, so I'm slightly nervous as well.

Good luck!!!

[JWorthington]

Good luck Rene. we will be here for you every step of the way

Juliex

[alizesmom]

So close. It will be here before you know it. I'll say a prayer for Tommy to have a easy time with the surgery. Just remember that we want to hear that sweet voice too. Karen

[JacobKaden]

Wow Rene - I had no idea it was coming up so quickly! Your family will be in my thoughts and prayers. Give that sweet boy a kiss for me.

[TommysMommy]

Originally Posted by faywrayy

Tommy is having a double stage, right? I am anxious to hear your experiences with the surgery and recovery. Kate's double stage is 12 days away, so I'm slightly nervous as well.

Good luck!!!

Yes, he's having the double stage. I will keep you as updated as I can.

[Lifeisgood]

Wow, that IS close! It still feels like forever till Harlie's jaw reconstruction (first week of June). But, hopefully, like you, the time will fly by. Our thoughts will certainly be with you.

Good luck!!!
Christy

[aydenava]

Good luck Tommy,I hope you get to hear his sweet little voice soon,it is priceless!...........Angie