 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
04-18-2008, 10:42 AM
|
|||
|
|||
devastating news
Our son, Joseph Francis, passed away suddenly on wednesday morning. Joseph had been doing so well until tues night when he developed some resp distress and fever. We brought him to the ER at midnight where he was scoped, CXR, urine cath and everything was normal. He perked up, sats were normal, and he was sucking on his pacifier when we left at 4 am. He looked like JoJO. Once we got home I restarted his feeds at 430 am and at 830 noticed his belly was distended and his sats were a little low but came up with blowby. The nurse came at 9 and relieved some gas from the tube and he looked much better, good sats and finally sleeping comfortably. At about 12 noon he woke up and didn't look great. We called the docs who changed his Gtube on monday and they told us to come in. We put Joseph in the car and less than a half mile from our home he stopped breathing and his heart stopped- all in a matter of seconds. We tried to revive him and they performed CPR for over 1 hour but JoJo did not come back.
Our worst nightmare came true and I am not sure how we will ever get over this or move on but I guess Joseph will help us. I know that he just didn't want to be hospitalized again and that is why he perked up when we were there, and passed away before we got him back there. He must have been tired. He was an angel on earth and now he is an angel in heaven. I want to thank all of you for your advice and support over the past few months. I wish good health and happiness for your children and your families. I hope you all rceive the support you need to get you through your child's illnesses. Finding trachesostomy.com was a big help for me. To know there were others who understood what it was like to have a child with a trach and other disabilities was what I needed. Thank you and God bless you.
__________________
Lauren Mom to Joseph, born 11/26/07 with Trisomy 9 Mosaic Laryngomalacia and severe reflux led to trach and G tube placement on January 3, 2008 
|
|
#2
04-18-2008, 10:55 AM
|
|||
|
|||
|
I am so sorry for your loss, you are in our prayers
|
|
#3
04-18-2008, 10:58 AM
|
||||
|
||||
|
Lauren, my deepest sympathy to you and your family. I hope you don't mind if I say a prayer for you to receive comfort and peace.
 Karen
__________________
Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
|
|
#4
04-18-2008, 11:10 AM
|
||||
|
||||
|
I am heart broken to hear your news. It is a tragedy. You are in my thoughts and prayers.
__________________
Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
|
|
#5
04-18-2008, 11:13 AM
|
||||
|
||||
|
You have my sympahty too, and your family is in thoughts. I am so sorry
__________________
LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
|
|
#6
04-18-2008, 11:53 AM
|
||||
|
||||
|
I'm so sorry. Your family is in my prayers.
Hope
__________________
custodial g-ma to Shelby ~~ premie born 9/28/05 with choanal atresia, trached 12/28/05 -- sub-glottic stenosis due to repeated intubations, decanned 3/10/08  http://s307.photobucket.com/albums/n...t=4acb482c.pbw
|
|
#7
04-18-2008, 11:56 AM
|
||||
|
||||
|
I'm so sorry! My thoughts and prayers are with your family during this heartbreaking time.
__________________
Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.  Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
|
|
#8
04-18-2008, 11:58 AM
|
||||
|
||||
|
Devastating news. I hope you can find some semblance of peace for yourself soon. Deepest sympathies.
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
|
|
#9
04-18-2008, 12:03 PM
|
||||
|
||||
Lauren, I am so saddened by this news. Sending sincere condolences from across the ocean, Joseph is at peace now
  Julie
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
|
Mom to Michael, 08/07/07, PRS
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 07:40 AM.