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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-27-2003, 08:30 PM
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Hi I hope everyone is doing well this evening. I was wondering if there were any chat room where people chat at from this web site?
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Trevor has Cystic Hygroma / Lymphanigiomas in floor of mouth, tongue, and chin area. He was trached at birth and also has a g-button. He is on pg. 16. http://mysite.verizon.net/res1ta6y/index.html 
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#2
08-28-2003, 07:50 AM
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Hope, I am not aware of a chat room directly related to this site. Some of us use yahoo, aol, private e-mail, etc. to communicate with one another.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#3
08-28-2003, 04:24 PM
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Im signing up for a AIM (AOL) instant messenger identity tonight. I'd love to chat to anyone whenever possible...Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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