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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
04-14-2008, 06:13 PM
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Back from Hospital
Well, after taking our son Myles to the ped on Friday AM, he took one look at him and sent him over to the local hospital for a ventolin mask and an xray.......the mask didn't help him much and the x-ray showed streaks......they sent us by ambulance to the childrens hospital. Once there I thought they would be quick about getting us a bed on the peds floor......not so, we waited in the ER for 48 hours.......at that point if we didn't get a bed in the peds floor I was going home. It was brutal waiting in the ER, almost no help whatsoever.......he had an IV in his head he kept pulling at and he was sick, sick sick......fever, not eating, throwing up...............he finally turned the corner yesterday when we got up to the peds floor...........if I had known we would have spent two days looking after him on our own in a teeny tiny room I think I would have gone home, at least we had nursing at home..........
Anyway, it was another learning experience I'm glad is done.....hopefully on May 16th they can decannulate him and we can put some of this behind us....... He had bronchiolitis.........similar to bronchitis.................I've never heard of it before....... 
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#2
04-14-2008, 06:18 PM
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Quote:
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#3
04-14-2008, 06:23 PM
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I'm so sorry you had a bad experience! I hate that you had to spend 48 hours in the ED, what a freaking nightmare.
May 16th will be here sooner than you think.. Lara
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Parents to Isaac, born 12/8/06, idiopathic bilateral vocal cord paralysis, trach'd since 11 days old, repair of acquired tracheomalacia and Decannulated on May 15, 2008, still with some vocal cord paresis (decreased motion)  
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#4
04-14-2008, 06:46 PM
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What a horrid thing to happen. I'm glad that Myles is doing better. Send a bill for nursing care to the hospital. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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