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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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  #11  
Old 04-14-2008, 09:28 AM
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aydenava aydenava is offline
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All kids are different,but when Ayden was a baby he needed his mist all the time,now he weres a HME during the day & mist at night,without it he would dry out in nothing flat!.......Angie
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Ayden 6 yrs,tracheomalacia,G-T,nissen,rare type dwarfism ,resolved pierre robin,bronceomalacia,Single stage LTP May 2008,now decanned!!! .Ava 2 years www.aydenava.blogspot.com
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Old 04-14-2008, 10:27 AM
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KSEThree KSEThree is offline
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We have an appt. scheduled for Friday, but we may see if we can get in earlier. My husband and I are suffering from allergies, as well as our middle daughter.

Tried the mist collar again yesterday. Liz held her breath and acted "naughty." I guess we'll just have to keep trying a little bit at a time.
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Old 04-16-2008, 03:20 AM
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Ainsley's Mom Ainsley's Mom is offline
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Warm mist should be more comfortable. I would use it at naps and night. Sneak it on her after she falls asleep and if you can't get it around her neck position it as close and you can to the trach. It'll still be better than nothing because it sounds like she's a little dry. You could also try saline drops. Use the HME's instead during the day as much as you can get her to keep them on. I love the new HME I posted about since you can suction through it. Good luck!
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).

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