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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-21-2008, 07:19 AM
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Humidity
emily has a giant humidifier blowing on her overnight everynight. some nights it seems that she doesn't really need it but you can't tell that until the morning!! so we use it always.
thing is that it's far from portable and won't actually fit into our car with us in it, plus emily, plus pram etc. i know you can get room humidifiers but these arent' really for the right purpose. how do other people deal with this??
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*clare. mum to emily  12/02/07 (placental abruption)APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day. Grade III SGS - emergency tracheotomy July 2007. 2 stage LTR July 09 - DECANNED 27.9.09 tracheomalacia (GONE!! Sept08) partial agenesis of the corpus callosum residual VSDs post-surgery but lung pressures normal (Nov08), ?septo-optic dysplasia. 
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#2
02-21-2008, 07:20 AM
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sorry, i should have been more specific and explained that at the moment we aren't able to travel away from home overnight due to size of humidifer.
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*clare. mum to emily 12/02/07 (placental abruption)APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day. Grade III SGS - emergency tracheotomy July 2007. 2 stage LTR July 09 - DECANNED 27.9.09 tracheomalacia (GONE!! Sept08) partial agenesis of the corpus callosum residual VSDs post-surgery but lung pressures normal (Nov08), ?septo-optic dysplasia.
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#3
02-21-2008, 08:05 AM
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Is Emily on a humidifier overnight? Your medical supply company should provide one for her. With that said, ours is small, but not exactly what I would consider portable.
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#4
02-21-2008, 08:08 AM
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You can try her on a HME overnight and see how she does. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#5
02-21-2008, 10:20 AM
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We also have a smaller one, which is portable. I would ask your medical supplier.
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Mom to Jacob, 26 Weeker - Our miracle boy, hero and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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#6
02-21-2008, 04:24 PM
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We've never been away overnight since Ainsley's birth, unless you count the hospital.
 If I were planning a trip I'd try an HME beforehand to see if that worked.
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery). Blog Link: http://ainsleyrae.blogspot.com/ 
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#7
02-21-2008, 04:34 PM
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We have always just had HME's 24/7 never a humidifier and we have had no problems
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Hanna mom to Villi 06/92.Svana 11/99. Álfrún 11/05  Svana Neurofibromatosis (NF1) Trached at 15 mo, ADHD, Hearing impaired, low muscle tone, tube fed only and much more.......
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#8
02-21-2008, 04:38 PM
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Hi Clare,
We've never had a humidifier. Angus has always used an HME attached to his circuit while on the vent, or just his trach otherwise. He sleeps using the vent. In the mornings he usually has a good old clear out of sticky gunk, but no plugs or anything like that.
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#9
02-23-2008, 05:00 AM
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Quote:
hme just no good for emily :-(
__________________
*clare. mum to emily 12/02/07 (placental abruption)APGARS 0+1 (HIE gr.2/seizures) but she MADE IT! with the determination that we still see in her every day. Grade III SGS - emergency tracheotomy July 2007. 2 stage LTR July 09 - DECANNED 27.9.09 tracheomalacia (GONE!! Sept08) partial agenesis of the corpus callosum residual VSDs post-surgery but lung pressures normal (Nov08), ?septo-optic dysplasia.
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