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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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  #1  
Old 08-11-2003, 05:23 AM
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Jacks Mum Jacks Mum is offline
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Hi Jeremy,

Welcome aboard!! Its good to see more dads coming on the board!

I am Jess, mum of Jack!

Take Care
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Jack (4 years) X-Linked Myotubular Myopathy, Trach/Vent/G-Tube, Cute button nose, Heart melting smile, Cheeky as can be!
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  #2  
Old 08-11-2003, 06:11 AM
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Jacob's Mom Jacob's Mom is offline
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I second what Jessica said. Welcome, Jeremy!! You guys seem like truly wonderful parents.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.

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Old 08-11-2003, 08:51 AM
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Ann Ann is offline
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Welcome Jeremy Â* Â* You and Christy are wonderful parents and have been through so much with your first child. Â*I'm so happy that things are moving in the right direction for Gaithy. Â*

Maybe I can convince my husband to spend some time on this board Â*

Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
TouchStones of Compassionate Care
The Willow Tree Foundation


“Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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  #4  
Old 08-11-2003, 10:40 AM
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indiemum indiemum is offline
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Welcome Jeremy! I think we all feel like we know your family, I hope you will find this forum as useful as we all seem to. Gaithy is a little peach and it is so nice to meet Christy's other half.

Kelly
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Kelly, mother of , Indira 6 (trach and g-tube)[/color] [/color]and Max 4. [/color]When there is no you are the reason I bound out of bed. Thank-you for giving me life!


See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
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  #5  
Old 08-13-2003, 12:11 AM
Judy Judy is offline
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Welcome Jeremy: You will find the people on this board very
knowledgeable and willing to share their knowledge with you.
It is good to see dad's taking part as you will add new ideas
and suggestions for all of us. Take care and check out this board every day, if possible. It is fantastic!
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Judy, Ken and *4*special Angels
(Shawnee 13, CP, develop., men. delayed, wheel chair.*Kimberly, 11, CP, Hydro.,02,
Microcep, leg. blind, G-tube, develop/ ment. delayed, *Kenya 13, Trach, CP,
02, leg. bld., hear. impair,J tube.
2 Angels in Heaven: Kiley and Colton
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  #6  
Old 08-14-2003, 03:57 PM
Rick (Mia's Dad)
 
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Hey Jeremy,

Welcome from one of the other dads. I hope that you get as much help and just comfort from reading the posts and getting answers to your questions on this board as I have. Gaithy is a beautiful girl - I'm sure you are proud of her.

Kath, I didn't realize that I was considered a "hanger" on this board. I don't get to participate as much as I would like. I also split time between this board and a couple of others related to Mia's other issues. But it is nice to be considered a part of this board. It has been very beneficial to me, if for nothing else, to feel like there are others facing the same things we do and having the same questions, frustrations, and hopes.
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  #7  
Old 08-15-2003, 12:17 AM
christyw christyw is offline
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What would be really cool - in my opinion - is if we could all organize a big meeting/picnic (like some foundations and organizations do) and meet each other. I guess it could be done, but the question would be where!! There are members from east to west and north to south - in various countries! I just feel like all of you people are so close to me - I guess this is sort of off in left field from this string of posts, but the posts just made me think about this. I will HAVE to meet some of you before it's all said and done!!

christy
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Gaithy's Mom:28wk preemie born 8/2000 at 1 LB, IUGR, SGA, ROP, BPD, g-tube/nissen. Trached 4-2001 and LTV950 ventilator until 5-2003. Decannulated 8-3-04
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