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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-13-2008, 12:53 PM
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Angus' new trach necklace
I modified the design slightly so the weight of the vent hose tugging on his neck would be spread over a greater area. It makes it less attractive, but it's been working brilliantly even with his vent. It was VERY hard to get it fastened, but once done up it wqs just the right length.
 
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#2
02-13-2008, 01:20 PM
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Very styling!
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Mom to Jacob, 26 Weeker - Our miracle boy, hero  and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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#3
02-13-2008, 01:22 PM
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Very sharp ! Love the colors !
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May Mommy to Sebastian(1-24-06), hardcore former 26 wk preemie, had and kicked butt of many issues, dealing with a few more , including autism. Trached 4/16/06 @ 3 months due to severe BPD and mild Tracheomalacia. Decanned 9-9-09 and doin' just fine !  http://sebastiansjourney.blogspot.com/
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#4
02-13-2008, 01:36 PM
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I love it! And I really like how you did the double strands. I'm on a vent at night and I've yet to wear mine to bed because of tugging of the vent tubing so I switch back to my regular chain. I may have to try that out myself!
Becky
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Becky Adult w/ ea/tef-repaired, chronic lung disease, o2, vent, j-button, trach and wife to the greatest husband in the world.  My blog: www.beckyhoughten.com 
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#5
02-13-2008, 04:07 PM
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Becky, this is how I threaded it:
I took a long bit of 15lb fishing line, doubled it, pushed the loop through the lobster claw, then threaded the ends through the loop. I put both ends through the first bead, then formed the separate strands with each thread. I put both threads through the last bead, then put them through the lobster clasp once, then once again. I then thread them back through the single bead then through their separate strands which is a bit fiddly, but do-able. Finally through the last bead and thread them through the lobster clasp twice. I do a tucked blood knot with one strand, then push the other strand back through a few beads and do a tucked blood knot with that. I don't cut the line close to the knots, I thread it through a few beads, then cut it. Hope that makes sense! Note: When putting these on you need to take care not to get them twisted. I think that next time I make this I will put 2 beads either end rather than just one. It'll make it easier to do up, and there'll still be enough breadth at the back to spread the load.
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'
Last edited by Alethia : 02-13-2008 at 04:17 PM. Reason: Added material
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#6
02-14-2008, 12:14 AM
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That looks very cool. I love the beads! Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#7
02-14-2008, 03:30 AM
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That's really cool Kate
what does Angus think?Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#8
02-14-2008, 04:09 AM
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Very stylish and as always Angus looking cool
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Hanna mom to Villi 06/92.Svana 11/99. Álfrún 11/05 Svana Neurofibromatosis (NF1) Trached at 15 mo, ADHD, Hearing impaired, low muscle tone, tube fed only and much more.......
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#9
02-15-2008, 09:40 AM
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LOVE it!
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Christy, Mom to Murphy, (8), Harlie (6) and Cooper (4). Harlie has Goldenhar Syndrome & VACTERL Assoc. Missing left ear/canal, left eye anomalies, g-tube & trached due to underdeveloped jaw, 5 open  surgeries, three jaw reconstructions (still trached, though), spinal fusion surgery, 30 surgeries total so far. www.lifesinceharlie.blogspot.com [IMG]  [/IMG]
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#10
02-15-2008, 10:58 AM
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Makes me want to try something like this for our man Joseph. That looks great.
Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count...  Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all. http://www.merrillsimonfamily.blogspot.com/
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