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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

02-01-2008, 10:32 AM
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Junior Member
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Join Date: Feb 2007
Location: Maine
Posts: 77
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Trach Chains?
I keep reading about trach chains on the list serv. Does anyone have pictures of examples? Would it be okay to use it on a two year old? The neck ties seem to take up so much room. Thanks. 
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Kristina
Mom to Jasmin
Former 27 weeker with Grade 3 Subglottic Stenosis
and new diagnosis of October 07---trachealmalacia
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02-01-2008, 01:10 PM
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Senior Member
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Join Date: Jan 2007
Location: Colorado
Posts: 3,979
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Pretty much anyone can wear a chain. There is one concern, if the child decans, you need cut away scissors that are meant to cut the metal. It's the chain that you get at the hardware store, but you have to make sure that you get the rust proof kind.
We had used it on Ayden when he was younger and especially in the summer as it is more breathable for him.
Depending upon your child, some of the girls make beaded necklaces w/ clasps on each end and use that instead for something pretty. (?)
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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02-01-2008, 01:22 PM
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Join Date: May 2007
Location: Southlake, TX
Posts: 100
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We started using it on Colin when he turned one. If we try to put the cloth ties on now he freaks. I love them, you only change them when you change the trach. When he was younger, he use to pull out his own trach out of frustration. Instead of worrying about getting that trach off from around his neck, I swing it to the side. Then I put the new trach in, then I worry about getting the old trach off. I find it easier. Colin just calls it his necklace.
Nicole
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02-01-2008, 05:31 PM
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Senior Member
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Join Date: May 2007
Location: Cochranton, PA
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Check Alize's picture in my signature. He's wearing a chain. I really like it for him. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel.
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02-02-2008, 07:55 AM
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Join Date: Jan 2008
Location: Iceland
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Hi I have never seen that before my question is how do you attach it or fasten it ???
This is something my daughter would love she is so self conscious now at school about her trach.
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Hanna mom to Villi 06/92.Svana 11/99. Álfrún 11/05
 Svana Neurofibromatosis (NF1) Trached at 15 mo, ADHD, Hearing impaired, low muscle tone, tube fed only and much more.......
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02-02-2008, 09:32 AM
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Senior Member
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Join Date: Jun 2005
Posts: 2,879
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Here's a pic of Tristan's necklace. I loved the lobster claw clasps. I made them from supplies bought at Hobby Lobby.

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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11.
Photography website: http://pricelessmemoriesphoto.com/
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02-02-2008, 03:37 PM
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Join Date: Jan 2007
Location: Colorado
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Quote:
Originally Posted by Hanna
Hi I have never seen that before my question is how do you attach it or fasten it ???
This is something my daughter would love she is so self conscious now at school about her trach.
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If you go w/ regular chains from the hardware store, they are like the chains for military dog tags or medical necklaces, so there is link/fastener which you can either do a single loop around the neck going through each side of the trach similar to a choker. OR loop it only behind the neck by putting it through one side of the trach with on end a little longer than the other and then loop that longer end through the other side of the trach. We do the latter.
hopefully those descriptions made sense.
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Dawn

former 26 weeker -- 4/2006 -- trach, g-tube, nissen; came home 1/07 vented 24/7; Successfully decanned 8/8/2008 - 
Follow decan at: http://sleepy-dogs.blogspot.com/
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02-02-2008, 07:48 PM
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Junior Member
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Join Date: Nov 2007
Location: Michigan
Posts: 34
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Dawna & everyone else with chain experience,
Tristin's "necklace" is so cute...  what did you string the bead on? Did you ever have a chain break leading to decan? And one last question for all of you out there with chain experience...do your kids ever have problems with red necks or does the chain allow for more breathability than the Dale ties?
Olivia is 6 (yikes...almost seven  in a few months) and she would totally love something "fancy" to wear to make her trach cooler than the Dale Pedistars ties can.
Thanks for any advice!
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Michelle, mommy to Aubrey (4), Isabel (3), Colton (almost terrible 2's) and Olivia 6 yrs old CCHS, PHOX 2B mutation 20/25, trach, vent & a happy little 1st grader
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02-02-2008, 09:32 PM
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Join Date: May 2007
Location: Cochranton, PA
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Quote:
Originally Posted by livysmommy
And one last question for all of you out there with chain experience...do your kids ever have problems with red necks or does the chain allow for more breathability than the Dale ties?
Thanks for any advice!
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Alize wears his chain constantly, no redness. His neck gets marks on it like you would get with any necklace but they go away when the necklace is adjusted. I never have to change it. He can be bathed and it dries quickly. He has had no skin tears, no redness, no open areas since we started with the chain. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel.
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02-02-2008, 10:57 PM
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Mentor
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Join Date: Feb 2004
Location: Augusta, Kansas
Posts: 2,665
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We absolutely love the chains!! We ordered ours from our DME and like the lobster clasp ones. I don't think they work well if you have to use a vent though. The vent tubing is too heavy. When Nate has been in the hospital and needed to be vented, we had to put ties back on. Just a little FYI!!
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~Marcie~Mom to Nate (8); trached at 5 wks due to chronic aspiration; CP, hypoglycemia (controlled with diet and meds), seizures, g-tube fed; Also mom to Brianna (16), Allison (14) and Delaney (3)
My blog Life Is Good
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