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LKN · #1 02-01-2008, 09:09 AM

We were there for 4 days of testing. Nathan did very well. We will find out about microaspiration in a week or so. The doctors said he doesn't present like a child who is aspirating so we will hope for the best.

Dr. Cotton was pleased that Nathan's growth has corrected some of his airway issues--the tracheal malacia is all but gone. And he has sprouted neocords on top of the scarring that should've been his true cords. He wants to wait another 6 months before the surgery to see what else Nathan can do on his own. The less he has to do when he reconstructs, the better the outcome and less chance of a repeated surgery.

I am disappointed that we cannot have the 2nd LTP in the next couple of months, but it is best for Nathan to wait. I was looking forward to a trach free summer of swimming! Patience is not my greatest strength!

Nathan learned to count while we were there. Very cute. He counts to five, and he does it out loud and signs it. It sounds like: "un, oo, ee, or, i" Music to my ears!

We were on a new floor--A 4 south--much better than B5 west--quieter and less interruption. The dirt cake with gummy worms is still fabulous. Nathan told his nurse he wanted to go to Dr. Cotton's house to play...I shudder to think what will come out next!

Congrats for everyone who has a surgery date. Let the decannulation season begin!!!

JWorthington · #2 02-01-2008, 10:53 AM

Kristy, glad it went well. Let's hope that Nathan will be swimming in summer next year

, it all sounds pretty positive, but probably best not to rush things. great about the counting - good job Nathan!

Juliex

Melisande · #3 02-01-2008, 11:51 AM

Kristy,

One step closer, eh? Good to see a light at the end of a LONG tunnel!!

aydenava · #4 02-01-2008, 01:37 PM

Kristy,swimming will come soon enough!Think of it this way ,at least he gets a break from surgery for to have a fun summer!We put a elmo sprinkler in a baby pool & Ayden loves it!

suzanne2545 · #5 02-01-2008, 03:45 PM

I'm sure I'm not the only one who wants a video of Nathan counting. How precious!!!

Thanks for the reminder on the dirt cake. I might have to have some everyday while we are there!

lovemymak · #6 02-01-2008, 04:34 PM

I'm glad you had a great visit. I hope he continues to make miracles with his little body! Go Nathan!

alizesmom · #7 02-01-2008, 05:37 PM

That sound like good progress and Nathan sounds like he's a smart one. Karen

Kaylie · #8 02-01-2008, 06:18 PM

Way to go Nathan with that counting and growing as well, you are doing a great job as well as mom and Dad. sorry that the surgery is not going to happen yet, but it sure seems that everything is going in the right direction forsure. i hope that we can see Nathan counting real soon when you have the chance. take care

JacobKaden · #9 02-01-2008, 08:34 PM

I know what you mean about patience not being your strong point

But, it definitely sounds like he is making such wonderful progress on his own and it will be worth it in the long run. Way to go on the counting Nathan - smart boy!

Lifeisgood · #10 02-04-2008, 05:37 AM

Kristy,

I hope will hope for no aspiration for you. I know that's disappointing about waiting for surgery, but I am glad to hear that he's improving on his own. That's great news and hopefully the next 6 months will bring great improvements. And the counting, what a smart boy you have!!!

-Christy