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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
12-19-2007, 03:00 PM
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Possible Naked Neck Soon.........
Well we are back from Cincinnati with great, exciting, and terrifying news. Colin had his scope done by Dr. Cotton and Dr. Putnum today. It only took 20 minutes. The swelling from the EE is gone yah!!!! The pulmicort and sugar mixture is working.... As long as the biopsy comes back good the next time we go to Cincinnati is for a double stage LTP. I can not believe it.......this might end. I have to say this is the best Christmas present I have ever received. Why is it so scary to think that your child might not have a trach? The thought of Colin not having that stable airway is frightening. The thought of something happening to that airway once it is fixed is terrifying.
Nicole 
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#3
12-19-2007, 07:15 PM
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Wonderful news!! I can understand why it is scary though.
Lara
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Parents to Isaac, born 12/8/06, idiopathic bilateral vocal cord paralysis, trach'd since 11 days old, repair of acquired tracheomalacia and Decannulated on May 15, 2008, still with some vocal cord paresis (decreased motion)  
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#4
12-19-2007, 09:44 PM
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What a Merry Christmas you got from Dr Cotton. Hope to see pictures of a naked neck soon. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#5
12-19-2007, 10:33 PM
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Such wonderful news!! Congrats!! I know it is scary, but it is soooo worth it!!
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Sabrina, mother to Will born a 24 weeker May 4, 2005. History of BPD, Trach August 2005, Gtube October 2005, ROP, Single Stage LTP 1/25/07 and trach free!!!! The happiest little boy who is the center of my world!!
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#6
12-20-2007, 10:01 AM
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Great news for you guys! Good time of year to get such hopeful news too.
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#7
12-20-2007, 11:33 AM
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Great news! Here's to a stable airway sans trach!
 Juliex
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#8
12-20-2007, 09:02 PM
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Nicole, Great news. Congradulations. Coles just had his LTP done and I know just how you are feeling. I was terrified about Cole having this trach out. But as Sabrina stated.... SOOO SOOOO well worth it. Good Luck! Janet
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