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  #11  
Old 12-18-2007, 11:23 AM
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lovemymak lovemymak is offline
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Oh Kate, I am so ecstatic for you to move on to the next step! I think that even though we trach moms are very hopeful about things, we are also very realistic. I know you've done your research, and you wouldn't keep pursuing it if you knew in your heart that he wasn't a good candidate. Here's hoping the Dr's agree!!!
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Sarah, Mommy to Malakai (9), Aubrey (8), and Keturah (6) trach, vent, Chiari I, BVCP, CCHS

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  #12  
Old 12-18-2007, 02:39 PM
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Weeeeee! Great news that at least they've started somewhere. Christmas wishes that you find plane tickets to the USA in your stocking this year!
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Rene, Mom to my Angel, Tommy. Born 9/25/06 at 33 weeks, with Single Ventricle Heart Defects and Cricopharyngeal Achalasia (Gtube dependant, poor swallow). Trached at 2 months for Severe Subglottic Stenosis. My little flirt died unexpectly 8/20/08 from complications from undiagnosed bronchopneumonia.


Forever, Tommy's Mommy http://www.musingsofaheartfamily.blogspot.com/
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  #13  
Old 12-18-2007, 03:31 PM
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That's great news Kate. Hope you can get a definite answer soon - what a great christmas present that would be
Juliex
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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  #14  
Old 12-18-2007, 03:54 PM
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Ainsley's Mom Ainsley's Mom is offline
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Kate, that sounds like good news to me! I hope Santa brings you a big YES for your stocking!
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SUSAN - Mom to Ainsley (age 6 - DOB 10/18/06) + Evie (age 12) and Adrian (age 9). Adorable and Trached since 11/06 (scarred vocal cords & OSA) but capping with mixed success since 1/09, sagittal craniosynostosis (cranial reconstructions 1/07 & 7/07), MicKey G-tube 06/07, Nissen 10/08, unusual form of cerebellar hypoplasia, hip dysplasia (Surgery 11/07 & 4/10), ptosis(post-surgery).

Blog Link: http://ainsleyrae.blogspot.com/
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  #15  
Old 12-18-2007, 05:35 PM
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oh i hope things go through!
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~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~

3-2007
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  #16  
Old 12-18-2007, 07:06 PM
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That is great news. Glad to see things are moving in the right direction. Hope things continue to go well and you hear an answer soon. You are such a great advocate and your hard work and persistence is paying off. Can't wait to hear back from you.

Angie-mom to Jacob (11) and Meghan (15)severe williams syndrome, epilepsy, heart defects, asthma, trached 10/22/07 for blocked upper airway, laryngomalacia, non-functioning epiglottis causing chronic aspiration, g-j tube with continuous j-feeds.
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  #17  
Old 12-18-2007, 09:31 PM
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This is fantastic news!
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Mom to Jacob, 26 Weeker - Our miracle boy, hero and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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  #18  
Old 12-19-2007, 12:12 AM
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Woohoo !! Hoping to all continues to work out smoothly as possible.
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May Mommy to Sebastian(1-24-06), hardcore former 26 wk preemie, had and kicked butt of many issues, dealing with a few more , including autism. Trached 4/16/06 @ 3 months due to severe BPD and mild Tracheomalacia. Decanned 9-9-09 and doin' just fine !
http://sebastiansjourney.blogspot.com/
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  #19  
Old 12-19-2007, 06:20 AM
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that sounds like a step in the right direction forsure. i hope and pray that things work out for the best .
I luv that boy..
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  #20  
Old 12-19-2007, 08:13 AM
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Great news Kate, will keep everything crossed for you! Hope they let you know asap!

Love,

Bea xx
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Mum to Katie (aged 8yrs). Born at 26 weeks weighing 790g, on CPAP for 18 months and has gastrostomy. Failed 3 LTPs and now has a t-tube. Has started speaking in the last six months after 5yrs!! Beautiful, strong little girl! Now eating everything by mouth after six years of tube feeds!!
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