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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
12-18-2007, 05:45 AM
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Got a letter from the Board of Directors!
For those of you who've been following the saga of trying to get lateral thoracic expansion surgery for Angus, here is an update. I got a letter from the Board of Directors yesterday saying that they have instructed Angus' consultant to "open dialogue" with Columbus Children's hospital. If they agree that Angus is suitable for surgery, then Yorkhill Children's Foundation will open an appeal to raise funds. So, I hope Angus is a candidate for this operation. I've been so sure he is for the past 2 years, that I never stopped to think that he might not be. I'll be gutted if the answer's no!
All I want for Xmas is a big YES!!! Love, Kate XXX
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#2
12-18-2007, 06:12 AM
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Well, opening dialogue sounds like an amazing step in the right direction! And, if YOU think he is a good candidate I would be surprised if he isn't! You are a great advocate for that cutie patootie and you know him best!
Fingers crossed. Suzanne
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Suzanne Mom to: Berkeley (June 2002),Griffin (July 2004), and Parker (November 2006) My family blog: http://www.mylifewithboys.typepad.com Parker's LTP Blog: www.parkersplace.wordpress.com 
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#3
12-18-2007, 06:25 AM
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Kate,
That is fantastic news! It is certainly a step in the right direction. I would agree with Suzanne...you've researched and researched and YOU think he is a good candidate and you certainly know how to get what Angus needs. I do hope this process moves quickly for you and Angus. Keep us posted. Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#4
12-18-2007, 06:58 AM
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Open dialogue is a first step in the right direction. I sure hope you will get a big YES for Xmas. You have done your research then you certainly must know what is right for Angus. I truly wish you the best. Keep us posted
Michelle
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Grand Ma (or Nanou French version of Nana) to Cedric born on August 5, 2006, Trached on October 16, 2007 because of subglottic stenosis due to 27 intubations for debridment of polyps https://www.babiesonline.com/babies/c/cedric1/
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#5
12-18-2007, 07:12 AM
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Gosh, certainly does sound like a step in the right direction!!
Keep us posted... 
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Linda - Mom to Collin, former 30wkr, IUGR, Severe BPD, in NICU 9months (decannulated 8/03), g-tube (removed 9/10), Neurodevelopmental Delays (secondary to complex medical history),ADHD-Inattentive Type, Sensory Processing Disorder www.nicumama.com www.purplelotuswebsitedesign.com
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#6
12-18-2007, 08:32 AM
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Sounds like giant leap in the right direction!! You know him better than anyone and if you think he's right for it, I'm sure they'll see he is!!!
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Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#7
12-18-2007, 08:47 AM
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I hope you get your wish for Christmas. Karen
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Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#8
12-18-2007, 09:36 AM
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Kate, You are an amazingly strong team captain in Angus' care and I have no doubt that you will continue to keep pushing the powers that be in the direction that is best for your precious boy!
Give your sweeties a big smooch from the across the pond!!
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#9
12-18-2007, 09:41 AM
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I hope things go well and you get the news you want. Fingers crossed here!
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Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#10
12-18-2007, 10:42 AM
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Yeah! Yeah! Yeah!!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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