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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
11-16-2007, 10:39 PM
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We have a date with Dr. Cotton
When we were in Cincinnati in October, Dr. Cotton and Dr. Wood said that they felt that it was time to look at making a small opening in Tommy's trachea to see if we can get him to vocalize. The intent is to give him a little safer airway and the possibility to move air and not to get rid of the trach at this time. Well, today we got the letter and they have the OR booked for January 24th. Seeing it in writing brought on mixed emotions. Please keep Tommy in your prayers.
__________________
Father (and mother) to Tommy, born via an emergency EXIT to Trache 8/1/06. Diagnosed with Congenital High Airway Obstruction Syndrome (CHAOS). VACTERRS Syndrome. Vocal cords completely fused until Double Staged LTP 03-03-08, refused shortly after stent was removed. Second Double Stage LTP 1-20-09. CarePage: BabyBoyce “With man this is impossible, but with God all things are possible.” 
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#2
11-17-2007, 03:08 AM
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Good luck, I hope you get some good news!
Juliex
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#3
11-17-2007, 06:56 AM
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Good luck. I know what you mean about seeing things in print.
__________________
Angela - mom to Zach 14, Jake 12, Nick 9, & Kate 9/28/06 Pierre Robin Sequence, Stickler Syndrome, decannulated July 4, 2008 -- Kate's blog http://pieceofkateb.blogspot.com/ 
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#4
11-17-2007, 07:18 AM
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Lots of prayers for a successful surgery. Karen
__________________
Karen, married to Charlie. Mom to Gilbete', Jeanette , Andrea, Ben, Ciara, Brian and Brady. Also mom to Alize who is with God. Grandmother to Marek, Paige, Vincent, Leilani and Cayden, Emma and Samuel. 
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#5
11-17-2007, 07:43 AM
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Tons of
 and hope it all goes wonderfully !
__________________
May Mommy to Sebastian(1-24-06), hardcore former 26 wk preemie, had and kicked butt of many issues, dealing with a few more , including autism. Trached 4/16/06 @ 3 months due to severe BPD and mild Tracheomalacia. Decanned 9-9-09 and doin' just fine !  http://sebastiansjourney.blogspot.com/
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#6
11-17-2007, 08:45 AM
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He's on my list!!
__________________
Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#7
11-17-2007, 02:22 PM
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Good luck! That will be here before you know it.
__________________
Mom to Jacob, 26 Weeker - Our miracle boy, hero  and the light of our lives Born 06/25/06; trached 10/17/06 for bilateral vocal cord paralysis, laryngomalasia, tracheamalasia, acquired subglottic stenosis, Failed Double Stage LTP 2009, Failed Single Stage LTP 09/16/10, Retrached 10/03/10;CP.
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