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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

11-10-2007, 09:04 AM
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Senior Member
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Join Date: Jun 2005
Posts: 2,879
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Stoma Closure anyone?
We will be going to Cinci bright and early Monday (12th) for Tristan's stoma closure! Does anyone have any insight on what we may expect? All the nurse told us what to plan to stay a couple of days. There's not a lot published about this procedure, so any words of wisdom are greatly appreciated!
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11.
Photography website: http://pricelessmemoriesphoto.com/
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11-10-2007, 09:50 AM
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Join Date: Nov 2005
Location: Marlton NJ
Posts: 1,029
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Sorry no insight. Adison was supposed to get hers done but it turned out it closed on it's own once the got in there and her tonsils were to big for them to do it if they wanted to.
I have heard of a few different techniques but im not sure what they are right now.
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11-11-2007, 06:32 AM
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Join Date: Sep 2005
Location: MA
Posts: 751
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Every surgeon who does the trach closure is different. For Collin they went in and closed it from inside out. He has so much scar tissue they had to go in and take it out then they closed the it surgically, on the outside Collin has a very fine line you can't even tell the trach was there. There are risks with this (as with any surgery) if your Dr. decided to go this route and I'm sure he will go over them with you.
Some doctors prefer to take out the scar tissue and have the stoma close on its own.
We were in the hospital overnight. Thankfully Collin wasn't in as much pain as I thought he would be. Tylenol for a few days and an antibiotic to prevent infection. And of course we had to keep him quiet for a few days. NO running or rough play.
GOOD LUCK!
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Linda - Mom to Collin, former 30wkr, IUGR, Severe BPD, in NICU 9months (decannulated 8/03), g-tube (removed 9/10), Neurodevelopmental Delays (secondary to complex medical history),ADHD-Inattentive Type, Sensory Processing Disorder
www.nicumama.com
www.purplelotuswebsitedesign.com
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11-11-2007, 10:04 AM
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Senior Member
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Join Date: May 2004
Location: Virginia Beach, VA
Posts: 1,589
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Dawna,
I hope all goes well!!
We went in last June (06) for a stoma closure and came out re-trached.
I "think" our ENT was going to clean out the scar tissue and let it try to close on it's own. Not so sure now. I know we weren't scheduled to stay over night.
I am sending you "CLOSURE" thoughts and vibes.
Leslie
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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11-11-2007, 11:18 AM
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Mentor
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Join Date: Jan 2005
Location: Glasgow, Scotland
Posts: 4,109
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No advice, but really chuffed for you that this is happening, and that it all goes smoothly - with a lovely smooth neck at the end of it all too!
Love,
Kate
XXX
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Kate,
Mum to:
Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met.
Pics and vids
Blog
Juliet 28/9/99 perfectly healthy and beautiful
Alasdair 28/9/10 Delightful, easy-going boy
I'm a 'dawk'
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11-11-2007, 01:46 PM
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Join Date: Jun 2002
Location: Columbus OH
Posts: 1,886
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Dawna-
Evan had his done in Cincinnati too-I think we were in for just one night. It healed up pretty quickly afterwards. See below link for type of closure that Dr. Cotton did on Evan. I think it all depends on the child and the amount of scar tissue they have but I seem to remember Dr. Cotton saying that this is the type he usually does. Good luck!
http://www.tracheostomy.com/resource...ma_closure.htm
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Anne, mom to Evan, born 1/18/01, preemie, TEF/EA repaired, subglottic stenosis, laryngeal web, trach at 6 wks, LTP 8/02, decannulated 5/17/03 , Mic-Key button removed 7/2/04.
http://www.tracheostomy.com/trachkids/kids11/evan
http://anne-evan.blogspot.com
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11-11-2007, 02:05 PM
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Senior Member
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Join Date: Jul 2005
Location: VA.
Posts: 3,664
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Best of luck to you all, i am sure he will speed right thru it.. He is such a big boy now. I wanted to wish you guys the best of luck and keep us posted when you can.. I luv that boy ..
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11-11-2007, 07:08 PM
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Join Date: Apr 2004
Posts: 274
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How exciting! We went in August to have Julianna's stoma closed and the procedure sounds like what others have described here. They did tell us to be ready to see her with a trach in while in recovery. They had pulled it before we even saw it. We were admitted for only one night and she did fine. We flew home the next day, although she was tired and we also kept her quiet for a couple days. I thought the site looked like a big, sore outie belly button for about a week afterwards. Then after about 2 weeks, it was definitely closed. Probably the most "trauma" was having the big, huge gauze pads and tape removed! We went to two big band aids and then down to one to cover while it was healing. You could do turtlenecks!
Take care and best of luck!
Tracy
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Mom to Julianna, born 10-4-02 with vocal cord paralysis; a little sweet pea! Decannulated 11-12-06!
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11-11-2007, 09:01 PM
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Senior Member
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Join Date: Jun 2004
Location: Northern Nevada
Posts: 2,764
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Nothing from the end of the peanut gallery...just prayers for a speedy recovery and a quick trip home.
Hugs,
Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count... Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all.
http://www.merrillsimonfamily.blogspot.com/
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